Searching for Rett Syndrome Support Organizations information? Find all needed info by using official links provided below.
https://www.rettsyndrome.org/
About Rett Syndrome. Rett syndrome is a rare non-inherited genetic postnatal neurological disorder that occurs primarily in girls and more rarely in boys. Rett syndrome leads to severe impairments, affecting nearly every aspect of the child’s life. Finding trusted information is the …
https://rarediseases.org/organizations/international-rett-syndrome-foundation/
The International Rett Syndrome Foundation is a non-profit, voluntary organization dedicated to three missions: research, advocacy and family support. Rett syndrome, a rare genetic neurological disorder that affects primarily females, is characterized by normal early development in the first year of life followed by a regression, which leads to ...
https://www.rettsyndrome.org/for-families/resources/national-resources/
There are many trustworthy, nation-wide services and supports available. Most resources included here are not Rett syndrome-specific, but legal support, funding resources and national special needs organizations can be invaluable. This list also provides information on donating your child’s blood for Rett syndrome research.
https://www.ninds.nih.gov/Disorders/All-Disorders/Rett-Syndrome-Information-Page
The course of Rett syndrome, including the age of onset and severity of symptoms, varies from child to child. Despite the difficulty with symptoms, many individuals with Rett syndrome continue to live well into middle age and beyond. Because the disorder is rare, more information is needed to assess long-term prognosis and life expectancy.
https://healthfinder.gov/FindServices/Organizations/Organization.aspx?code=HR2241
Rett syndrome (RTT) is a neuro-developmental disorder that occurs mostly in females. It’s usually caused by a mutation of the MECP2 gene on the x chromosome. Rett syndrome is found in all racial and ethnic groups throughout the world, and in every socioeconomic class. RTT affects 1 …
https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Rett-Syndrome-Fact-Sheet
Aug 13, 2019 · Rett syndrome is a neurodevelopmental disorder that affects girls almost exclusively. It is characterized by normal early growth and development followed by a slowing of development, loss of purposeful use of the hands, distinctive hand movements, slowed brain and head growth, problems with walking, seizures, and intellectual disability.
https://www.raisinforrett.org/
Fundraising for a curated group of organizations who support families and research for Rett Syndrome and related disorders. Purchase. Scroll . 2020 Benefit Gala. April 24, 2020. Join us at Hotel Northland for our first event. This is a chance to dress up, eat good food, bid on some amazing auction items, and of course… learn about Rett ...
http://www.katefoundation.org/rett_syndrome.html
About Rett Syndrome The Syndrome. Rett syndrome is a neurological disorder and the most physically disabling of the autism spectrum disorders. After normal early development, girls with Rett syndrome lose the ability to speak and begin to have difficulty with motor control around 6-18 months of age.
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