Searching for Rett Syndrome Support Services information? Find all needed info by using official links provided below.
https://www.rettuk.org/how-we-can-support-you/local-support-groups-2/
Local Support Groups. Rett syndrome is such a rare disorder it can leave you feeling terribly isolated. You may be desperate to be near someone who understands what’s happening and is experiencing the same roller coaster of emotions you’re going through.
https://www.rettsyndrome.org/for-families/resources/state-resources/new-york/
Biobanking of Rett Syndrome and Related Disorders. Visit Biobanking of Rett Syndrome and Related Disorders Website The purpose of this study is to advance understanding of the natural history of Rett syndrome (RTT), MECP2-duplication disorder (MECP2 Dup), RTT-related disorders including CDKL5, FOXG1, and individuals with MECP2 mutations who do not have RTT.
https://www.rettsyndrome.org/for-families/resources/state-resources/nevada/
Family Support Services Program. Visit Family Support Services Program Website The Family Support Services Program was developed to assist families to care for their relatives in the family home as a means to prevent out-of-home placement. It provides financial assistance for eligible families to obtain services for their family member.
https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Rett-Syndrome-Fact-Sheet
Aug 13, 2019 · What is Rett syndrome? Rett syndrome is a neurodevelopmental disorder that affects girls almost exclusively. It is characterized by normal early growth and development followed by a slowing of development, loss of purposeful use of the hands, distinctive hand movements, slowed brain and head growth, problems with walking, seizures, and intellectual disability.
https://www.rettuk.org/how-we-can-support-you/
Our Services. Rett UK has been pr oviding support services for over 30 years. The founding families are still involved today and bring a valuable insight to the Rett …
https://www.rchsd.org/programs-services/neurology/conditions-treated/rett-syndrome/
Rett Syndrome. About Rett Syndrome. Rett syndrome is a neurodevelopmenal disorder that is seen almost exclusively in girls. It is estimated to affect one in every 10,000 to 15,000 live female births, in all racial and ethnic groups worldwide.
https://rettsyndromemass.org/
Rett Syndrome Association of Massachusetts is on a mission to improve and enhance the quality of life for all of those affected by Rett Syndrome and RS related disorders in New England.
https://rarediseases.org/organizations/international-rett-syndrome-foundation/
The International Rett Syndrome Foundation is a non-profit, voluntary organization dedicated to three missions: research, advocacy and family support. Rett syndrome, a rare genetic neurological disorder that affects primarily females, is characterized by normal early development in the first year of life followed by a regression, which leads to ...
https://en.wikipedia.org/wiki/Rett_syndrome
Rett syndrome (RTT) is a genetic brain disorder that typically becomes apparent after 6 to 18 months of age in females. Symptoms include problems with language, coordination, and repetitive movements. Often there is slower growth, problems walking, and a smaller head size. Complications can include seizures, scoliosis, and sleeping problems. Those affected, however, may be affected to ...Causes: Mutation of the MECP2 gene
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