Searching for Rett Syndrome Support Australia information? Find all needed info by using official links provided below.
http://www.rettaustralia.com/about-rsaa/
Formed in Melbourne in July 1989, the Rett Syndrome Association of Australia Inc. (RSAA) is a not-for-profit organisation which is managed by a Committee of volunteers, most of whom are parents of children with Rett syndrome.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3152673/
Methods. The Australian Rett Syndrome Database (ARSD), established in 1993 is a population-based database of RTT cases born since 1976 ().Study approval was obtained from the Human Research Ethics Committee of Princess Margaret Hospital and families provided informed consent before …Cited by: 96
https://www.rettsyndrome.org/
About Rett Syndrome. Rett syndrome is a rare non-inherited genetic postnatal neurological disorder that occurs primarily in girls and more rarely in boys. Rett syndrome leads to severe impairments, affecting nearly every aspect of the child’s life. Finding trusted information is the …
http://rettresearch.org.au/
Rett syndrome is a devastating neurological disorder with no cure. The disorder is caused by random mutations in the gene known as MECP2 and almost exclusively affects girls. The girls are known as ‘silent angels’ as many are unable to speak.
http://www.rettaustralia.com/about-rett-syndrome/what-is-rett-syndrome/
Rett Syndrome Association of Australia What is Rett syndrome? ... Rett syndrome (RTT) which is seen almost exclusively in females, is a genetic disorder in which the brain does not mature in the way it should. For most affected children, their early development appears normal but then slows down or suddenly halts. This period of their lives ...
https://rettaustralia.org.au/about-rett-syndrome/history-of-rett-syndrome-in-australia/
Rett syndrome begins to be diagnosed in Australia in late 1983. Four years later, the first organised get-together of Rett families to be held in this country, takes place in Perth. In 1989, RSAA publishes its brochure marking the first occasion that the words ‘Rett syndrome’ and ‘Australia’ appear together in …
https://rettaustralia.org.au/donate/
The Rett Syndrome Association of Australia Inc. (RSAA) is a charity registered with the Australian Charities and Not-for-profit Commission (ACNC). Over the years, the RSAA has provided support to parents, siblings and carers; organised and funded State-based family gatherings; and financially supported Rett syndrome-specific research and projects.
https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/rett-syndrome
The Genetic Support Network of Victoria (GSNV) is connected with a wide range of support groups throughout Victoria and Australia and can connect you with other individuals and families affected by Rett syndrome. The Rett Syndrome Association of Australia also organises gatherings of people and families living with Rett syndrome across Australia.
https://www.ncbi.nlm.nih.gov/pubmed/16615965
Rett syndrome in Australia: a review of the epidemiology. Laurvick CL(1), de Klerk N, Bower C, Christodoulou J, Ravine D, Ellaway C, Williamson S, Leonard H. Author information: (1)Telethon Institute for Child Health Research, Centre for Child Health Research, The University of Western Australia, Perth.Cited by: 257
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