Searching for Osteogenesis Imperfecta Support Organizations information? Find all needed info by using official links provided below.
https://www.thinkgenetic.com/diseases/osteogenesis-imperfecta/organizations/27321
There are several support groups or organizations for osteogenesis imperfecta (OI) that provide support, information, advice, guidance, referrals to physicians and medical centers, and up-to-date information on research and treatments.
We are excited to celebrate our 50th Anniversary with the OI community throughout 2020! Thank you to the dedicated individuals and families that have helped the OI Foundation move forward in our mission to improve the lives of those living with OI through education, awareness, research, and mutual support over the past 50 years.
https://rarediseases.org/organizations/osteogenesis-imperfecta-foundation/
The Osteogenesis Imperfecta Foundation (OIF) is a non-profit organization dedicated to improving the quality of life for individuals affected by osteogenesis imperfecta through research, education, awareness, and mutual support. Osteogenesis imperfecta (OI) is a genetic disorder characterized by abnormally fragile bones.
https://www.diseaseinfosearch.org/disease/5451/support
The mission of the Children's Brittle Bone Foundation is to provide funds for research into the causes, diagnosis, treatment, prevention, and eventual cure for Osteogenesis Imperfecta (OI), while supporting programs which improve the quality of life for people afflicted with ...
https://oiproject.weebly.com/support-groups.html
Support groups are very important to the patients and to their families. There are many support groups for Osteogenesis Imperfecta victims. One of the biggest support groups is the OI Foundation. It is a really nice organization and their newsletters are very nice (I got one so I know they are nice).
http://www.kumc.edu/gec/support/osteogen.html
Osteogenesis imperfecta information and links to national and international support groups, clinics with genetic counselors and geneticists. Osteogenesis Imperfecta. Osteogenesis Imperfecta Foundation, Inc. (OIF) 804 W. Diamond Avenue, NW, Suite 210 Gaithersburg, MD 20878 Phone: 1-800-981-BONE or (301) 947-0083 ...
https://www.dailystrength.org/group/osteogenesis-imperfecta
Osteogenesis Imperfecta Support Group. Osteogenesis imperfecta is a group of genetic bone disorders. It is one of the brittle bone diseases. People with OI either have less collagen than normal or the quality is poorer than normal.
https://rarediseases.info.nih.gov/diseases/1017/osteogenesis-imperfecta
51 rows · Feb 16, 2018 · The Brittle Bone Disorders Consortium (BBD) is an integrated group of …
Supporting people affected by Osteogenesis Imperfecta throughout the UK and Ireland. The Brittle Bone Society is the national charity that supports individuals and families affected by Osteogenesis Imperfecta. See how we can support you and your loved ones...
How to find Osteogenesis Imperfecta Support Organizations information?
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