Searching for Osteogenesis Imperfecta Support Agencies information? Find all needed info by using official links provided below.
Aims of the COIS: To provide emotional support on a personal level for parents and people with OI; To fully acquaint medical personnel, hospitals, educational institutions, and social agencies with all facets of osteogenesis imperfecta
https://www.nemours.org/services/osteogenesis-imperfecta-program.html
Osteogenesis Imperfecta Services We Offer. As one of the world’s leading programs for the treatment of OI, we provide a complete range of medical care and support services. And, if your child has multiple medical needs, you can have access to — and coordinated appointments with — more than 30 other medical and surgical specialties, all ...
http://www.oif.org/site/PageServer?pagename=SN_FindGroup
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https://www.thinkgenetic.com/diseases/osteogenesis-imperfecta/organizations/27321
There are several support groups or organizations for osteogenesis imperfecta (OI) that provide support, information, advice, guidance, referrals to physicians and medical centers, and up-to-date information on research and treatments.
https://www.diseaseinfosearch.org/disease/5451/support
Support Services. Support & Peer Matching (0) Medical Referrals (0) ... The mission of the OI Foundation is to improve the quality of life for those living with osteogenesis imperfecta through research, education, awareness and mutual support. Area Served: State
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5388361/
Apr 04, 2017 · CNSs ensure that written advice and recommendations are pertinent to the needs of the child. As a team, we work in collaboration with the Brittle Bone Society and the Paediatric Osteogenesis Imperfecta National Team (POINT) to provide support and trusted advice and information across services.Cited by: 11
https://brittlebone.org/support/nhs-services/paediatric-osteogenesis-imperfecta-national-team/
Paediatric Osteogenesis Imperfecta National Team The Paediatric Osteogenesis Imperfecta National Team (POINT) was formed with an aim to provide a forum for clinicians in the UK with an interest in Osteogenesis Imperfecta (OI) to meet and share information and ideas with each other.
https://www.education.sa.gov.au/supporting-students/health-e-safety-and-wellbeing/health-support-planning/managing-health-education-and-care/physical-health/osteogenesis-imperfecta
Information on how education and care services provide proactive and reactive management for children and young people with osteogenesis imperfecta (OI). The Osteogenesis imperfecta in education and care procedure (under development) will describe how education and care services support children and young people with osteogenesis imperfecta.
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