Opsoclonus Myoclonus Support Network

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The Opsoclonus Myoclonus Syndrome Support Network, Inc ...

    https://rarediseases.info.nih.gov/organizations/527
    The Opsoclonus Myoclonus Syndrome Support Network, Inc. 2116 Casa Linda Drive West Covina, CA 91791 Telephone: 626-315-8125 E-mail: ... Opsoclonus myoclonus syndrome, OMS, Kinsbourne syndrome, Ataxo-opso-myoclonus syndrome, OMA syndrome, Opsoclonus-myoclonus-ataxia syndrome, Dancing eye-dancing feet syndrome, Dancing eye syndrome, POMA syndrome ...

Opsoclonus-Myoclonus Support Network, Inc. - NORD ...

    https://rarediseases.org/organizations/opsoclonus-myoclonus-support-network-inc/
    Opsoclonus is a condition in which there are nonrhythmic vertical and horizontal movements of the eyes. Established in 1994, the Opsoclonus Myoclonus Syndrome Support Network, Inc., enables parents and families to exchange information, support, and resources.

OMSLife Foundation – OMSLife Foundation

    https://omslifefoundation.org/
    The Board of Directors of The OMSLife Foundation presented Boston Children’s Hospital with a three year grant totaling $75,000 for development of an international clinical data registry and biorepository for Opsoclonus Myoclonus Syndrome.

Opsoclonus-myoclonus syndrome Genetic and Rare Diseases ...

    https://rarediseases.info.nih.gov/diseases/10009/opsoclonus-myoclonus-syndrome
    May 11, 2017 · Opsoclonus-myoclonus syndrome (OMS) is a rare disorder that affects the nervous system. Symptoms include rapid, multi-directional eye movements (opsoclonus), quick, involuntary muscle jerks ( myoclonus ), uncoordinated movement ( ataxia ), irritability, and sleep disturbance.

Opsoclonus Myoclonus Information Page National Institute ...

    https://www.ninds.nih.gov/Disorders/All-Disorders/Opsoclonus-myoclonus-Information-Page
    Opsoclonus myoclonus is a rare neurological disorder characterized by an unsteady, trembling gait, myoclonus (brief, shock-like muscle spasms), and opsoclonus (irregular, rapid eye movements). Other symptoms may include difficulty speaking, poorly articulated speech, or an inability to speak.

Disease InfoSearch - Opsoclonus Myoclonus Support Network ...

    https://www.diseaseinfosearch.org/organization/view/255
    The Opsoclonus Myoclonus Support Network recognizes the immediate need of Opsoclonus Myoclonus patients and their families to network with others affected by the syndrome, to have access to comprehensive information relating to the syndrome, and to be informed of the latest research, and recognizes the immediate need to have medical professionals better informed about the syndrome, its ...

Opsoclonus-Myoclonus Syndrome

    https://rarediseases.org/wp-content/uploads/2019/06/Power-of-Patients-1-OMS-chapter-lr.pdf
    awareness of Opsoclonus-Myoclonus Syndrome, maintain a support network for patients and caregivers, and fund research.” Thank you to the OMS specialists who treat our OMS warriors, and a special thank you to NORD and Trio Health!

Opsoclonus Myoclonus - BrainFacts

    https://www.brainfacts.org/Diseases-and-Disorders/Neurological-Disorders-AZ/Diseases-A-to-Z-from-NINDS/Opsoclonus-Myoclonus
    Opsoclonus Myoclonus Support Network, Inc. Serves as a resource center for opsoclonus myoclonus patients and health professionals, including physicians and researchers, and helps patients and their families to network with others affected by the syndrome. Any person affected by the syndrome is considered a community member.

Opsoclonus - Myoclonus Support Network - GuideStar Profile

    https://www.guidestar.org/profile/23-2895064
    Opsoclonus - Myoclonus Support Network Quick Facts. place. JIM THORPE, PA Summary . Programs + Results. Financials . Operations . This organization has not appeared on the IRS Business Master File in a number of months. It may have merged with another organization or ceased operations.Location: JIM THORPE, PA 18229

Adult-Onset Opsoclonus-Myoclonus Syndrome Movement ...

    https://jamanetwork.com/journals/jamaneurology/fullarticle/1358221
    Dec 01, 2012 · Opsoclonus-myoclonus syndrome (OMS) is well described in children (also known as Kinsbourne syndrome 1), usually occurring as a paraneoplastic neurologic accompaniment of neuroblastoma 1,2 with long-term neurologic, behavioral, and developmental sequelae. 3,4 The OMS literature on adults is largely confined to cases and small case series. Most clinicians know that a …Cited by: 114



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