Searching for Opsoclonus Myoclonus Support Network information? Find all needed info by using official links provided below.
https://rarediseases.info.nih.gov/organizations/527
The Opsoclonus Myoclonus Syndrome Support Network, Inc. 2116 Casa Linda Drive West Covina, CA 91791 Telephone: 626-315-8125 E-mail: ... Opsoclonus myoclonus syndrome, OMS, Kinsbourne syndrome, Ataxo-opso-myoclonus syndrome, OMA syndrome, Opsoclonus-myoclonus-ataxia syndrome, Dancing eye-dancing feet syndrome, Dancing eye syndrome, POMA syndrome ...
https://rarediseases.org/organizations/opsoclonus-myoclonus-support-network-inc/
Opsoclonus is a condition in which there are nonrhythmic vertical and horizontal movements of the eyes. Established in 1994, the Opsoclonus Myoclonus Syndrome Support Network, Inc., enables parents and families to exchange information, support, and resources.
https://omslifefoundation.org/
The Board of Directors of The OMSLife Foundation presented Boston Children’s Hospital with a three year grant totaling $75,000 for development of an international clinical data registry and biorepository for Opsoclonus Myoclonus Syndrome.
https://rarediseases.info.nih.gov/diseases/10009/opsoclonus-myoclonus-syndrome
May 11, 2017 · Opsoclonus-myoclonus syndrome (OMS) is a rare disorder that affects the nervous system. Symptoms include rapid, multi-directional eye movements (opsoclonus), quick, involuntary muscle jerks ( myoclonus ), uncoordinated movement ( ataxia ), irritability, and sleep disturbance.
https://www.ninds.nih.gov/Disorders/All-Disorders/Opsoclonus-myoclonus-Information-Page
Opsoclonus myoclonus is a rare neurological disorder characterized by an unsteady, trembling gait, myoclonus (brief, shock-like muscle spasms), and opsoclonus (irregular, rapid eye movements). Other symptoms may include difficulty speaking, poorly articulated speech, or an inability to speak.
https://www.diseaseinfosearch.org/organization/view/255
The Opsoclonus Myoclonus Support Network recognizes the immediate need of Opsoclonus Myoclonus patients and their families to network with others affected by the syndrome, to have access to comprehensive information relating to the syndrome, and to be informed of the latest research, and recognizes the immediate need to have medical professionals better informed about the syndrome, its ...
https://rarediseases.org/wp-content/uploads/2019/06/Power-of-Patients-1-OMS-chapter-lr.pdf
awareness of Opsoclonus-Myoclonus Syndrome, maintain a support network for patients and caregivers, and fund research.” Thank you to the OMS specialists who treat our OMS warriors, and a special thank you to NORD and Trio Health!
https://www.brainfacts.org/Diseases-and-Disorders/Neurological-Disorders-AZ/Diseases-A-to-Z-from-NINDS/Opsoclonus-Myoclonus
Opsoclonus Myoclonus Support Network, Inc. Serves as a resource center for opsoclonus myoclonus patients and health professionals, including physicians and researchers, and helps patients and their families to network with others affected by the syndrome. Any person affected by the syndrome is considered a community member.
https://www.guidestar.org/profile/23-2895064
Opsoclonus - Myoclonus Support Network Quick Facts. place. JIM THORPE, PA Summary . Programs + Results. Financials . Operations . This organization has not appeared on the IRS Business Master File in a number of months. It may have merged with another organization or ceased operations.Location: JIM THORPE, PA 18229
https://jamanetwork.com/journals/jamaneurology/fullarticle/1358221
Dec 01, 2012 · Opsoclonus-myoclonus syndrome (OMS) is well described in children (also known as Kinsbourne syndrome 1), usually occurring as a paraneoplastic neurologic accompaniment of neuroblastoma 1,2 with long-term neurologic, behavioral, and developmental sequelae. 3,4 The OMS literature on adults is largely confined to cases and small case series. Most clinicians know that a …Cited by: 114
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