Searching for Opsoclonus Myoclonus Support information? Find all needed info by using official links provided below.
https://rarediseases.org/organizations/opsoclonus-myoclonus-support-network-inc/
Opsoclonus is a condition in which there are nonrhythmic vertical and horizontal movements of the eyes. Established in 1994, the Opsoclonus Myoclonus Syndrome Support Network, Inc., enables parents and families to exchange information, support, and resources.
https://rarediseases.info.nih.gov/organizations/527
The Opsoclonus Myoclonus Syndrome Support Network, Inc. 2116 Casa Linda Drive West Covina, CA 91791 Telephone: 626-315-8125 E-mail: [email protected]. Supported Diseases. Opsoclonus-myoclonus syndrome. Synonyms: Opsoclonus myoclonus syndrome, OMS, Kinsbourne syndrome, Ataxo-opso-myoclonus syndrome, OMA syndrome, Opsoclonus-myoclonus ...
https://rarediseases.info.nih.gov/diseases/10009/opsoclonus-myoclonus-syndrome
May 11, 2017 · A registry supports research by collecting of information about patients that share something in common, such as being diagnosed with Opsoclonus-myoclonus syndrome. The type of data collected can vary from registry to registry and is based on the goals and purpose of that registry.
https://www.ninds.nih.gov/Disorders/All-Disorders/Opsoclonus-myoclonus-Information-Page
The NINDS supports and conducts research on movement disorders such as opsoclonus myoclonus. These studies are aimed at increasing knowledge about these disorders and finding ways to prevent, treat, and cure them.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5823978/
Opsoclonus-myoclonus syndrome (OMS) is characterized by the combination of opsoclonus and arrhythmic action myoclonus that predominantly involves trunk and limbs usually accompanied by axial ataxia and dysarthria. 1 The 2 most common causes of OMS are paraneoplastic and idiopathic, 2,3 but the clinical features, types of tumors, and other comorbidities are different in children and adults.Cited by: 67
https://en.wikipedia.org/wiki/Opsomyoclonus
The National Institute of Neurological Disorders and Stroke (NINDS) conducts and supports research on various movement disorders, including opsoclonus myoclonus. These studies are focused on finding ways to prevent, treat, and cure these disorders, as well as increasing knowledge about them.Specialty: Neurology
https://www.facebook.com/groups/229786860371566/
OMSLIFE - Opsoclonus Myoclonus Syndrome Support Group has 1,424 members. OMSLIFE is a family forum intended to provide an avenue for parents to share...
https://www.neurotalk.org/general-health-conditions-and-rare-disorders/254886-opsoclonus-myoclonus.html
Jan 14, 2020 · A safe, supportive environment for online support and information for those with neurological and related conditions. My wife is being treated for what her neurologist thinks is Opsoclonus Myoclonus. I can find very little information on this based on how rare it is. Opsoclonus Myoclonus - NeuroTalk Support Groups
https://rarediseases.org/rare-diseases/opsoclonus-myoclonus-syndrome/
Support; Close; for Patient Organizations. Join Membership Network ... children with only occasional or subtle opsoclonus or myoclonus are harder to recognize and may carry the wrong diagnosis for years. Myoclonus and tremor can occur in other conditions without opsoclonus and with or without ataxia. ... Pranzatelli MR, Tate ED, Dukart WS ...
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