Searching for Marfan Syndrome Support Forum information? Find all needed info by using official links provided below.
https://www.marfan.org/get-involved/community/online-community
Disclaimer: Our online community is provided as a service for members of the Marfan syndrome and related disorders community to come together and share their personal experiences and thoughts. It is not intended to replace the advice of a qualified medical professional. Information on our online community is not validated for accuracy.
https://twitter.com/Marfan_Forum
Feb 19, 2016 · The latest Tweets from Marfan Support Forum (@Marfan_Forum). Marfan syndrome is an inherited disorder of the body's connective tissue that affects men and women of any race or ethnic group. Join Our forum for more info!. United KingdomFollowers: 1.9K
https://www.marfan.org/get-involved/connect-community/local-community
What is Marfan Syndrome? What are Related Conditions? What are the Signs? How is the Body Affected? WHAT IS NEONATAL MARFAN SYNDROME? Current Research; What to Expect. ... Local Support & Groups. Other Ways to Get Support. Phone Support Groups Find a Mentor Become a Mentor Join our Online Community Ask Our Help Center . Can't Find a Group?
https://forums.webmd.com/3/heart-disease-exchange/forum/1451/0
His height is 71 and his length is 75. She seen his medical records and he has sclerosis (mild) that he gets xrays for every year. At the end of all this she came in andgave me this name "Marfan Syndrome" She told me to look it up on the internet and scheduled an apointment for an ECO and said my son can not do anything! till this is done on ...
https://www.facebook.com/MarfanForumPage
Marfan Syndrome Forum Page. 674 likes · 2 talking about this. Support page for MARFAN Syndrome, LDS - Loeys-Dietz, EDS - Ehlers-Danlos syndrome &...Followers: 699
https://www.marfan.org/event/parent-toolkit/your-resources-supports
Marfan CONNECT is our online community that allows people impacted by Marfan syndrome and other related disorders to link with others through online groups and forums. There are more than over 100 different groups such as The Parents Place, Teen Spot, Young Adults 18-35 Group, Family Member Support, and Living with Marfan 30-40.
https://nyulangone.org/conditions/marfan-syndrome-in-adults/support
Marfan syndrome is a lifelong condition, and doctors at NYU Langone provide ongoing support to help people manage the symptoms and improve their quality of life. You may need specialized care to prevent or slow serious medical conditions that can be associated with Marfan syndrome.
https://www.dailystrength.org/group/marfan-syndrome
Dec 24, 2016 · Marfan Syndrome Support Group. Marfan syndrome is a connective tissue disorder characterized by unusually long limbs. The most serious conditions associated with Marfan syndrome primarily involve the cardiovascular system. Marfan syndrome may cause leakage of the mitral or aortic valves that control the flow of blood through the heart.
http://www.marfanworld.org/
Marfan World, which was formally known as the International Federation of Marfan Syndrome Organizations was founded in 1992 at the Second International Symposium on Marfan Syndrome in San Francisco, California. The mission of Marfan World is to: Share current, accurate information about the Marfan syndrome and related conditions worldwide
http://nmfconnect.marfan.org/
And that’s not all. In conjunction with the app, we are launching the first-ever Marfan and Related Conditions International Patient Registry, which leverages the power of de-identified, aggregated data to perform studies to advance the understanding of Marfan syndrome and related conditions.
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