Searching for Marfan Syndrome Support Australia information? Find all needed info by using official links provided below.
http://www.marfanqld.org.au/
The Marfan Association Queensland (MAQ) is a volunteer run support group for people and families affected by Marfan syndrome and related conditions. We are a not-for-profit, charitable recipient group and donations to our organisation can be tax deductible. Our members come from all regions of Queensland and the northern areas of New South Wales.
http://www.marfanvic.org.au/
Marfan Syndrome Awareness. This video focuses on recognising the signs and symptoms of Marfan syndrome, including recognising / suspecting an aortic dissection in an emergency situation and best treatment practices.
http://www.geneticalliance.org.au/conditions_detail.php?Marfan-Syndrome-341
Marfan syndrome is an inherited condition that affects the connective tissue of the heart and blood vessels (cardiovascular system). The musculoskeletal system (ligaments and muscles) and ocular system (eyes) are also affected.
https://www.marfan.org/get-involved/connect-community/local-community
What is Marfan Syndrome? What are Related Conditions? What are the Signs? How is the Body Affected? WHAT IS NEONATAL MARFAN SYNDROME? Current Research; What to Expect. ... Local Support & Groups. Other Ways to Get Support. Phone Support Groups Find a Mentor Become a Mentor Join our Online Community Ask Our Help Center . Can't Find a Group?
https://www.marfan.org/resources/patients
We offer fact sheets about various aspects of Marfan syndrome and related disorders and have an extensive video series that highlights the most commonly asked questions. We offer phone and online support groups for families coping with Marfan syndrome and related disorders. We can help you find local support.
https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/marfan-syndrome
Marfan syndrome is a genetic disorder of the body’s connective tissue, which may affect the heart, eyes, skeleton and lungs. The most serious effects include those on the cardiovascular system, particularly the heart valves and aorta.
https://www.marfan.org/secure/community-support
We can connect you with local community groups, which are located all over the country. Many groups focus on social and support events, while other groups also hold fundraising and awareness events. You can get involved in all or some of the events held by your local group. In some areas, we have individual support volunteers rather than a group.
http://www.marfanworld.org/
Marfan World, which was formally known as the International Federation of Marfan Syndrome Organizations was founded in 1992 at the Second International Symposium on Marfan Syndrome in San Francisco, California. The mission of Marfan World is to: Share current, accurate information about the Marfan syndrome and related conditions worldwide
Marfan syndrome is a life-threatening genetic condition, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related conditions. Knowing the signs of these conditions can save lives. Learn more.
How to find Marfan Syndrome Support Australia information?
Follow the instuctions below:
- Choose an official link provided above.
- Click on it.
- Find company email address & contact them via email
- Find company phone & make a call.
- Find company address & visit their office.
