Angelman Support

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Support - Angelman Syndrome - Angelman Syndrome

    https://www.angelmanuk.org/support/
    As children with Angelman Syndrome age, progressive side-to-side curvature of the spine (scoliosis) may become apparent occurring in approximately 10% of children, The problem is more common in adulthood with about 40% of adult individuals with Angelman Syndrome requiring braces or …

Support Resources - Angelman Syndrome Foundation

    https://www.angelman.org/resources-education/support-resources/
    The Angelman Syndrome Foundation is the largest non-governmental funder of Angelman syndrome-specific research. It is our hope that these funded researchers, and their collaborators and peers, will bring forth new discoveries that ultimately lead to treatments and a …

Angelman Syndrome - UK Support, Education and Research ...

    https://www.angelmanuk.org/
    You’re one in a million! Well, if you’re affected by Angelman Syndrome you’re more like one in twenty thousand – but you’re in good company. Whether you’re directly affected by AS, would just like to know more about it, or would like to help raise funds we’re here to support you. And make your life easier.

Information About Angelman Syndrome Support Groups ...

    https://angelmansyndromenews.com/2019/11/01/information-about-angelman-syndrome-support-groups/
    Nov 01, 2019 · Support groups can offer a sense of community and be a great information resource for caregivers of patients with rare diseases such as Angelman syndrome. Caring for a child or relative with a rare disorder such as Angelman syndrome can be challenging, with information hard to find about the disease or doctors who specialize in treating it ...

ASSERT – Angelman Syndrome Support, Education & Research Trust

    https://www.angelmantoday.com/assert/
    Sep 13, 2013 · ASSERT began in 1991 – although launched 1st January 1992 – as a support group run by families and for the benefit of families of people with Angelman Syndrome. ASSERT began with 15 families and these pioneers have subsequently been joined by more and more from within the UK and from places as far away as Australia and New Zealand and America as the diagnosis has become …



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