Searching for Wiedemann Support information? Find all needed info by using official links provided below.
https://www.bwssupport.com/
The Beckwith-Wiedemann Syndrome Support Group was started in 1990 by a group of parents with BWS children to share problems and information and to act as a self-help group. It aims to promote both public and professional awareness of BWS and to support and encourage research. The UK group has links with BWS groups in Spain, Italy and America.
https://www.bwssupport.com/about-us
About us. Founded in 1990, our group provides information and support to families of children with BWS. We work with the Great Ormond Street Hospital Macroglossa Service, and with family networks around the world. We can: Put you in touch with other parents who live nearby.
https://www.bihl-wiedemann.de/us/support/direct-contact.html
Bihl+Wiedemann offers a wide variety of ASi modules, all of which are compatible with the current ASi-3 or ASi-5 standard. These are equipped with a various number of in- and outputs offering the right module for any application.
https://www.beckwithwiedemann.org/
Beckwith-Wiedemann Children’s Foundation Int’l (BWCFI) has been educating and assisting families diagnosed with BWS since 1998. Our mission is to provide correct information about BWS – at the initial diagnosis and throughout the child’s life.
http://www.wssfoundation.org/
The Wiedemann-Steiner Syndrome Foundation (WSS) serves as the cornerstone of knowledge for individuals affected by the syndrome, their families, physicians, and researchers. Together we advocate for comprehensive research with meaningful discoveries and connect the WSS community through thoughtful engagement.
https://www.chop.edu/conditions-diseases/beckwith-wiedemann-syndrome
Beckwith-Wiedemann syndrome is a genetic disorder commonly characterized by overgrowth. The severity of this disorder varies widely in children and is usually recognized at birth, when a child is born with several features of Beckwith-Wiedemann syndrome.
https://www.facebook.com/groups/667174239987278/
Wiedemann-Steiner Syndrome Parent Support Group has 747 members. A group for moms and dads with kids with Wiedemann - Steiner syndrome , to share , get...
http://www.mybwsbaby.com/
Find information when your baby or child is diagnosed with Beckwith-Wiedemann Syndrome or BWS. Find help on this chromosome disorder, from feeding issues, macroglossia or large tongue, holistic cancer remedies, tongue reduction surgery, life in the NICU hospital, and read real life stories.
http://www.wiedenmannusa.com/
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https://ghr.nlm.nih.gov/condition/beckwith-wiedemann-syndrome
Oct 29, 2019 · Beckwith-Wiedemann syndrome is a condition that affects many parts of the body. It is classified as an overgrowth syndrome, which means that affected infants are considerably larger than normal (macrosomia) and tend to be taller than their peers during childhood.
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