Searching for Usher Syndrome Family Support information? Find all needed info by using official links provided below.
https://www.usher-syndrome.org/
Usher Syndrome Coalition: Connecting the Global Usher Community. Our mission is to raise awareness and accelerate research while providing information and support to individuals and families affected by Usher syndrome. We strive to be the most comprehensive resource for the Usher syndrome community, bridging the gap between researchers and families.
https://www.familyconnect.org/info/after-the-diagnosis/browse-by-condition/usher-syndrome-in-children/123
When accompanied with hearing loss, your child will be given a diagnosis of Usher syndrome. Additionally, if a family member has a diagnosis of Usher syndrome, your child’s hearing, peripheral vision, and eyes should be examined by an audiologist and ophthalmologist. Genetic testing is also available to help determine an early diagnosis.
https://www.sense.org.uk/get-support/information-and-advice/conditions/usher-syndrome/families-and-usher/
Usher syndrome is a condition that affects every person, and their family, differently Supporting a child with Usher syndrome can be challenging, but with the right guidance, small changes and adaptations, your child will be able to live a full and independent life.
http://www.hearseehope.com/about-usher-syndrome/
Usher syndrome is the most common cause of deafblindness in the United States. It is a combination of Retinitis Pigmentosa (RP) and some level of hearing loss. There are about 10-15,000 people with Usher syndrome in the United States today.
https://www.usher-syndrome.org/our-story/blog/interpreting-the-data-on-usher-syndrome-and-psychosis-is-there-a-connection.html
Jan 09, 2013 · Interpreting the Data on Usher Syndrome and Psychosis: Is There a Connection? January 9, 2013. by Jennifer Phillips, Ph.D. Since my return to blogging with an analysis of recent peer-reviewed literature on Usher research, another paper that will probably have relevance to a lot of our blog readers has come to my attention.
https://rarediseases.org/rare-diseases/usher-syndrome/
Usher syndrome is a rare genetic disorder primarily characterized by deafness due to an impaired ability of the inner ear and auditory nerves to transmit sensory (sound) input to the brain (sensorineual hearing loss) accompanied by retinitis pigmentosa, a disorder that affects the …
http://www.deafblind.com/nidcd.html
Usher Syndrome (US) Newsletter Usher Family Support [a newsletter by and for families of people with any type of Usher Syndrome], c/o Helen Anderson, 4918 42nd Avenue South, Minneapolis MN 55417 About US [a newsletter by and for people with Usher syndrome Type 2], c/o Vision Screening Project, 5801 Southwood Drive, Bloomington MN 55437,
How to find Usher Syndrome Family Support information?
Follow the instuctions below:
- Choose an official link provided above.
- Click on it.
- Find company email address & contact them via email
- Find company phone & make a call.
- Find company address & visit their office.
