Searching for Tuberous Sclerosis Support Uk information? Find all needed info by using official links provided below.
https://tuberous-sclerosis.org/
The Tuberous Sclerosis Association support individuals and families affected by TSC. Our dedicated advisers and active community are here for you.
https://tuberous-sclerosis.org/information-and-support/contact-our-support-team/
The Tuberous Sclerosis Association (TSA) helps support people all around the UK who are affected by TSC. A source to ask questions and confide, you can talk to us about any TSC-related topic including first steps following a recent diagnosis, outreach for emotional support or help with filling out a benefits form.
https://tuberous-sclerosis.org/information-and-support/how-to-be-referred-to-an-nhs-tsc-clinic/list-of-nhs-clinics/
Find a local NHS TSC clinic Information and contact details for NHS TSC clinics across the UK There are NHS TSC clinics across the UK, with specialist clinicians and researchers in each who understand the impact that living with TSC can have on individuals and families. NHS TSC clinics
https://tuberous-sclerosis.org/for-professionals/healthcare-professionals/uk-clinical-guidelines-for-tsc/
UK clinical guidelines for TSC Background, information and download links for the UK clinical guidelines for the diagnosis, care and management of TSC The first ever UK clinical guidelines for TSC in the NHS were recently published by Oxford University Press in QJM: An …
https://contact.org.uk/advice-and-support/medical-information/conditions/t/tuberous-sclerosis-complex/
Tuberous Sclerosis Association UK. Email: via website www.tuberous-sclerosis.org. The Association is a Registered Charity in England and Wales No. 1039549. It provides information and support to anyone affected by Tuberous Sclerosis Complex. The Association has a team of advisors across the UK who offer individual and family support.
https://tuberous-sclerosis.org/the-tsa-supports-rare-disease-uks-rare-reality-campaign/
The TSA is pleased to announce its official support for Rare Disease UK’s Rare Reality campaign, which has been launched in the run-up to Rare Disease Day 2019 on 28 February. Rare Reality aims to illustrate the experiences of people with rare diseases and those […]
https://tuberous-sclerosis.org/information-and-support/treatment-and-management/
Treatment and management How a person living with Tuberous Sclerosis Complex might be monitored, treated and cared for Tuberous Sclerosis Complex (TSC) is a lifelong condition that may require long-term care in different forms, depending on the severity and impact of …
https://www.nhs.uk/conditions/tuberous-sclerosis/
People with tuberous sclerosis may also have an increased risk of developing certain types of cancer, such as kidney cancer, but this is rare. Tuberous Sclerosis Association (TSA) The TSA provides information, advice and support to individuals and families affected by tuberous sclerosis.
https://www.tsalliance.org/
What is Tuberous Sclerosis Complex? TSC is a genetic disorder that causes tumors to form in various organs, primarily the brain, eyes, heart, kidneys, skin and lungs.
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