Tuberous Sclerosis Support Organizations

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Home The Tuberous Sclerosis Association

    https://tuberous-sclerosis.org/
    The Tuberous Sclerosis Association support individuals and families affected by TSC. Our dedicated advisers and active community are here for you.

Tuberous Sclerosis Alliance Support Group & Forum - Inspire

    https://www.inspire.com/groups/tuberous-sclerosis-alliance/
    The Tuberous Sclerosis Alliance Support Community connects everyone affected by tuberous sclerosis complex for support and inspiration. This community is sponsored by the Tuberous Sclerosis Alliance, an Inspire trusted partner.

Home - TSCI - Tuberous Sclerosis Complex International

    https://www.tscinternational.org/
    A Worldwide Organization of Tuberous Sclerosis Complex Associations. We are united to support anyone with tuberous sclerosis complex. International TSC Consensus Guidelines. Learn More. ... A Vision for the Future The International Tuberous Sclerosis Complex Research Conference 2020 will take place November 12-14, 2020 at the Royal College of ...

Tuberous Sclerosis Alliance

    https://www.tsalliance.org/
    What is Tuberous Sclerosis Complex? TSC is a genetic disorder that causes tumors to form in various organs, primarily the brain, eyes, heart, kidneys, skin and lungs. It’s also the leading genetic cause of both epilepsy and autism.

Tuberous sclerosis - kumc.edu

    http://www.kumc.edu/gec/support/tuberous.html
    tuberous sclerosis information, links lay advocacy groups and genetic support groups Tuberous sclerosis Tuberous Sclerosis Alliance (National Tuberous Sclerosis Association prior to Dec 2000))

For Patients and Families Tuberous Sclerosis Clinic

    https://www.cincinnatichildrens.org/service/t/tuberous-sclerosis/patients
    Dena Hook is the director of advocacy and education for the Tuberous Sclerosis Alliance. Hook has many years of experience in advocating for children with disabilities and is available to help patients and families at our clinic. She is available two days a month in person at our clinic.



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