Searching for Trisomy 13 Syndrome Support information? Find all needed info by using official links provided below.
SOFT has provided trisomy 18 & trisomy 13 information, resources, support and an annual conference to families since 1980.
https://www.internationaltrisomyalliance.com/trisomy-support-groups.html
Groups are included if they provide support and information for families affected by trisomy 13 and trisomy 18. The inclusion of any links does not necessarily imply a recommendation or endorsement of the views expressed within them, and the views or opinions expressed by individuals do not necessarily reflect those of ITA.
https://ghr.nlm.nih.gov/condition/trisomy-13
Oct 15, 2019 · Trisomy 13, also called Patau syndrome, is a chromosomal condition associated with severe intellectual disability and physical abnormalities in many parts of the body.Individuals with trisomy 13 often have heart defects, brain or spinal cord abnormalities, very small or poorly developed eyes (microphthalmia), extra fingers or toes, an opening in the lip (a cleft lip) with or without an opening ...
https://rarediseases.info.nih.gov/diseases/7341/trisomy-13
59 rows · Mar 17, 2016 · Trisomy 13 is associated with severe intellectual disability and physical …
https://www.hopefortrisomy13and18.org/
Hope for Trisomy 13 and 18 is a nonprofit, tax-exempt 501(c)(3) created in honor and memory of all living and nonliving children with Trisomy 13 and 18 and Related Conditions. The organization is now doing business as simply HOPE FOR TRISOMY to better represent its broader scope.
http://dayfornight.com/jmjtrisomy13archive/resources/trisomy-13-support.htm
TRISOMY SUPPORT - PATAU SYNDROME SUPPORT General Support, Information & Links. The LivingWithTrisomy13.org Message Boards - Would you like to visit with the families who have shared their stories on this site? You can email them privately or request access to this sites message board.
https://www.cancertherapyadvisor.com/home/decision-support-in-medicine/pediatrics/trisomy-13-pataus-syndrome/
Trisomy 13, caused by the presence of an extra chromosome 13 in every cell of the body, is the most rare and severe of the viable trisomic conditions. Mean survival is less than 1 week of age ...Author: Emily Lisi
https://trisomy.org/other-trisomy-18-or-13-supportgroups/
♥ The International Trisomy 18/13 Alliance ITA is a volunteer, not-for-profit organization focusing on trisomy 13 and trisomy 18, (also known as Patau and Edwards syndromes respectively). The mission is to offer trisomy 13 and trisomy 18 support groups, physicians and other professionals, accurate information to enable parents to make ...
https://www.facebook.com/groups/Trisomy13/
Trisomy 13 LIFE Support - Living with Patau Syndrome has 1,986 members. Group Questions must be answered before a new member is approved. *Check your...
https://www.webmd.com/children/trisomy-13
It can be extremely difficult to hear that your unborn baby has trisomy 13, also known as Patau Syndrome. You probably have a lot of questions about what caused it and whether or not it can be ...
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