Searching for Trisomy 13 Support Forums information? Find all needed info by using official links provided below.
http://dayfornight.com/jmjtrisomy13archive/resources/trisomy-13-support.htm
Trisomy Voices A collection of AUDIO interviews with families touched by trisomy 18, trisomy 13, and other rare trisomy disorders. Hope for Trisomy 13 & 18 Funding Research, Promoting Education, Raising Awareness and Changing Lives. Maddison's Foundation - Moms and Dads in search of needed support. Madison's Foundation is dedicated to improving ...
SOFT has provided trisomy 18 & trisomy 13 information, resources, support and an annual conference to families since 1980. Skip to content. Trisomy 18, Trisomy 13 and Related Disorders. SOFT is a primary source of information about Trisomy, Care Management and Family Support ... • What do we know now about Trisomy 13?
https://www.internationaltrisomyalliance.com/trisomy-support-groups.html
Groups are included if they provide support and information for families affected by trisomy 13 and trisomy 18. The inclusion of any links does not necessarily imply a recommendation or endorsement of the views expressed within them, and the views or opinions expressed by individuals do not necessarily reflect those of ITA.
https://community.whattoexpect.com/forums/termination-for-medical-reasons/topic/trisomy-13-617.html
There is great support here. My story is long so I won't go into too much detail. I have had a MMC at 11 weeks, and 2 TFMR. I delivered my son Liam at 16 weeks and my son Nate at 22 weeks. With Liam they were expecting Trisomy 13 but the amino came back normal and we weren't able to get an answer. At that point we suspected it was something ...
https://community.whattoexpect.com/forums/termination-for-medical-reasons/topic/trisomy-13-180.html
My son had a deletion on chromosome 3 that caused many problems and the diagnosis was very similar to trisomy 13. It was the hardest day of our lives getting that news. We cried so hard because like you, our baby was so wanted. We didn't want him to suffer either. At 18w I …
https://endingawantedpregnancy.com/mosiac-trisomy-13-nobody-tells-you/
May 26, 2017 · Mosiac Trisomy 13 Diagnosis Confirmed. The post-termination pathology confirmed the Mosaic Trisomy 13 diagnosis and hypoplastic left heart syndrome (HLHS). His heart was half the weight it should have been at 22 weeks gestation. Once it was over I still had to deal with all the normal post-partum issues but without the joy of having the baby.
https://www.hopefortrisomy13and18.org/
Hope for Trisomy 13 and 18 is a nonprofit, tax-exempt 501(c)(3) created in honor and memory of all living and nonliving children with Trisomy 13 and 18 and Related Conditions. The organization is now doing business as simply HOPE FOR TRISOMY to better represent its broader scope.
https://rarediseases.info.nih.gov/diseases/7341/trisomy-13
Mar 17, 2016 · Trisomy 13 is associated with severe intellectual disability and physical abnormalities in many parts of the body. People with this condition often have congenital heart defects, brain or spinal cord abnormalities, very small or poorly developed eyes (microphthalmia), extra fingers and/or toes (polydactyly), cleft lip or palate, and decreased muscle tone (hypotonia).
https://ghr.nlm.nih.gov/condition/trisomy-13
Oct 15, 2019 · Trisomy 13, also called Patau syndrome, is a chromosomal condition associated with severe intellectual disability and physical abnormalities in many parts of the body.Individuals with trisomy 13 often have heart defects, brain or spinal cord abnormalities, very small or poorly developed eyes (microphthalmia), extra fingers or toes, an opening in the lip (a cleft lip) with or without an opening ...
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