Searching for Tay Sachs Support Organizations information? Find all needed info by using official links provided below.
NTSAD provides family services, research, and education for Tay-Sachs, GM-1, Sandhoff, and Canavan. Join our cause to wipe out these genetic diseases.
https://www.thinkgenetic.com/diseases/tay-sachs-disease/organizations/42441
There are several support groups or organizations for Tay-Sachs disease that provide support, information, advice, referrals to physicians and medical centers, and up …
https://www.ntsad.org/index.php/find-support
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases. ... A Family Gathering The NTSAD Annual Family Conference is the cornerstone of our exceptional Family Support Services. It provides over ...
https://gettheinfoontaysachs.weebly.com/support-and-organizations.html
support and organizations For people diagnosed with or affected by Tay-Sachs, there are a number of websites where they can glean information, find advice, and share their story. People who are new to the disease can learn in-depth information about their condition from sites belonging to organizations like the National Tay-Sachs and Allied ...
https://www.cats-foundation.org/
The CATS Foundation was established in June 2011 by Daniel and Patricia Lewi. Their daughter Amelie was diagnosed with Tay-Sachs at fifteen months of age in March 2011 and at the time there was no UK based charity dedicated to providing support for families affected by Tay-Sachs or Sandhoff disease.
https://rarediseases.org/organizations/national-tay-sachs-and-allied-diseases-association-inc/
The National Tay-Sachs & Allied Diseases Association, Inc. (NTSAD) is a voluntary, non-profit health organization dedicated to the prevention and treatment of Tay-Sachs, Canavan and related genetic diseases. It provides information and support services to individuals and families affected by these diseases, as well as to the public.
https://rarediseases.info.nih.gov/diseases/7737/disease
Jan 22, 2018 · Tay-Sachs disease is a rare, inherited neurodegenerative disease. People with Tay-Sachs disease do not have enough of an enzyme called beta-hexosaminidase A. The less enzyme a person has, the more severe the disease and the earlier that symptoms appear. There are 3 forms of Tay-Sachs disease, distinguished by the general age of onset:
https://diseaseinfosearch.org/disease/7008/support
The mission of the National-Tay Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives.
https://www.ninds.nih.gov/Disorders/All-Disorders/Tay-Sachs-Disease-Information-Page
Tay-Sachs disease is an inherited metabolic disease caused by the harmful buildup of lipids (fatty materials such as oils and acids) in various cells and tissues in the body. It is part of a group of genetic disorders called the GM 2 gangliosidoses.
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