Searching for Tay Sachs Family Support information? Find all needed info by using official links provided below.
https://www.ntsad.org/index.php/find-support
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases ... Support for Families Families dealing with adult Late Onset Tay-Sachs, Sandhoff or GM1 gangliosidosis disease, ... A Family Gathering The NTSAD Annual Family Conference is the cornerstone of our exceptional Family Support Services.
https://www.ntsad.org/index.php/late-onset-suport
Mar 24, 2017 · Support for Families. Families dealing with adult Late Onset Tay-Sachs, Sandhoff or GM1 gangliosidosis disease, known as Lysosomal Storage Diseases, have common symptoms and common approaches for managing the symptoms. Read through this section to learn about various symptom management techniques, where to find help, and how to cope.
http://www.cats-foundation.org/
The CATS Foundation was established in June 2011 by Daniel and Patricia Lewi. Their daughter Amelie was diagnosed with Tay-Sachs at fifteen months of age in March 2011 and at the time there was no UK based charity dedicated to providing support for families affected by Tay-Sachs or Sandhoff disease.
https://www.thinkgenetic.com/diseases/tay-sachs-disease/organizations/42441
There are several support groups or organizations for Tay-Sachs disease that provide support, information, advice, referrals to physicians and medical centers, and up …
https://www.mdjunction.com/tay-sachs-disease
The Tay-Sachs Disease Support Group is a community of patients, family members and friends dedicated to dealing with Tay-Sachs Disease, together.
https://www.rarefindfoundation.org/
Rare Find Foundation exists to support those affected and their families, support research and to raise awareness of Tay-Sachs and Sandhoff Diseases. Making a real and long lasting difference to those affected by these rare diseases.
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