Searching for Spinal Muscular Atrophy Family Support information? Find all needed info by using official links provided below.
Dedicated to providing information, support and help for anyone facing the incurable genetic disease Spinal Muscular Atrophy (SMA). Learn about the disease, research, treatments, and life with the disease, speak with others in similar positions.
https://www.togetherinsma.com/en_us/home/living-with-sma/community.html
Cure SMA provides a nationwide support system to the spinal muscular atrophy community. For those newly diagnosed, they offer a number of resources, including care packages, information packets, and a family support staff. Cure SMA funds a comprehensive research program focused on developing treatments for all types and ages of SMA.
https://hcp.smanewstoday.com/caregiver-support/
Caregivers of patients with Spinal Muscular Atrophy (SMA) report neglected aspects of their lives.1 Caregivers will need different kinds of support depending on factors such as the specific type of SMA their child has, whether they have other children, whether they intend to have future pregnancies, their socioeconomic status, and how extensive their social support …
https://www.dailystrength.org/group/spinal-muscular-atrophy-sma
Spinal Muscular Atrophy (SMA) Support Group. Spinal Muscular Atrophy (SMA) is a term applied to a number of different disorders, all having in common a genetic cause and the manifestation of weakness due to loss of the motor neurons of the spinal cord and brainstem.
https://www.medicalhomeportal.org/living-with-child/diagnoses-and-conditions---faqs/spinal-muscular-atrophy
The Questions and Answers that follow aim to provide an introduction to spinal muscular atrophy (SMA) for parents and other family members. Following those, we offer links to selected resources for more information and support and a list of valuable services.
https://www.babysfirsttest.org/newborn-screening/conditions/spinal-muscular-atrophy
Support groups can help connect families who have a child or other family member affected with spinal muscular atrophy with a supportive community of people who have experience and expertise in living with the condition. These organizations offer resources for families, affected individuals, health care providers, and advocates. Cure SMA
Cure SMA provides support to patients and families affected by spinal muscular atrophy and funds and directs research leading the way to a cure for SMA. Cure SMA provides support to patients and families affected by spinal muscular atrophy and funds and directs research leading the way to a cure for SMA. ... The Forcier Family December 23rd ...
https://www.mda.org/disease/spinal-muscular-atrophy
Spinal muscular atrophy (SMA) is a genetic disease affecting the central nervous system, peripheral nervous system, and voluntary muscle movement (skeletal muscle). Most of the nerve cells that control muscles are located in the spinal cord, which accounts for the word spinal in the name of the disease.
Welcome to Spinal Muscular Atrophy UK. If you or someone in your family has SMA, and you live in the UK, you have come to the right place for support and information about the condition and the latest developments with new treatments. We have been supporting individuals, families …
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