Searching for Rubinstein Taybi Syndrome Family Support information? Find all needed info by using official links provided below.
Registered Charity No. . 1147765. Registered in the UK. Company limited by guarantee registered in England and Wales No. 7866190. Registered office: 39 Hale Road ...
https://www.diseaseinfosearch.org/disease/6372/support
The Rubinstein-Taybi Parent Group USA was created to provide contact and information to those families and individuals dealing with RTS, and to provide information to anyone seeking help for an individual with RTS.
https://www.cincinnatichildrens.org/service/r/rubinstein-taybi
The Rubinstein-Taybi Syndrome Program at Cincinnati Children's provides expert confirmation of diagnosis as well as the latest treatments and support. Giving …
https://www.ucucedd.org/wp-content/uploads/2019/02/CCHMC-Rubinstein-Taybi-Syndrome-booklet-FA_4-WEB.pdf
Center (CCHMC) and the Rubinstein-Taybi Syndrome Ohio-Kentucky-Indiana (RTS OKI) Family Support Group. Huge thanks go out to the physicians at CCHMC who have expertise working with individuals with RTS and have been an invaluable resource in the process of creating and editing this booklet. Another big thank
https://rarediseases.org/organizations/rubinstein-taybi-parent-group/
The Rubinstein-Taybi Parent Group (RTPG) is a voluntary, non-profit, self-help organization that is dedicated to providing information, assistance, and support to parents, healthcare professionals, and others who care for children with Rubinstein-Taybi syndrome (RTS).
http://rubinstein-taybi.com/medical-7/book-for-families/
The Rubinstein-Taybi Syndrome Parent Group is a national organization for families who have a child or adult with Rubinstein-Taybi syndrome. A newsletter is sent out periodically to provide information concerning Rubinstein-Taybi syndrome and to serve as a forum for sharing similar experiences.
http://rubinstein-taybi.org/bluebook/
The 1998 International Family Conference on Rubinstein-Taybi Syndrome is very grateful for the generous support of The Special Friends Foundation. This document was added to the Rubinstein-Taybi web site in November 2000.
https://www.ncbi.nlm.nih.gov/books/NBK1526/
Aug 30, 2002 · The Rubinstein-Taybi Syndrome Program at Cincinnati Children’s is one of the country’s leading programs for the care of children with RTS and provides expert confirmation of diagnosis as well as the latest treatments and support.Cited by: 10
https://ghr.nlm.nih.gov/condition/rubinstein-taybi-syndrome
Oct 29, 2019 · Rubinstein-Taybi syndrome is a condition characterized by short stature, moderate to severe intellectual disability, distinctive facial features, and broad thumbs and first toes. Additional features of the disorder can include eye abnormalities, heart …
http://rubinstein-taybi.com/
What is RTS… If you are new to this site and looking for answers concerning Rubinstein-Taybi Syndrome then please visit the Book For Families.. The book explains what Rubinstein-Taybi Syndrome is, characteristics and other information concerning RTS.
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