Searching for Rubinstein Taybi Support information? Find all needed info by using official links provided below.
Registered Charity No. . 1147765. Registered in the UK. Company limited by guarantee registered in England and Wales No. 7866190. Registered office: 39 Hale Road ...
http://rubinstein-taybi.com/
What is RTS… If you are new to this site and looking for answers concerning Rubinstein-Taybi Syndrome then please visit the Book For Families.. The book explains what Rubinstein-Taybi Syndrome is, characteristics and other information concerning RTS.
https://ghr.nlm.nih.gov/condition/rubinstein-taybi-syndrome
Oct 29, 2019 · Rubinstein-Taybi syndrome is a condition characterized by short stature, moderate to severe intellectual disability, distinctive facial features, and broad thumbs and first toes.Additional features of the disorder can include eye abnormalities, heart and kidney defects, dental problems, and obesity.
https://rarediseases.org/organizations/rubinstein-taybi-parent-group/
Description The Rubinstein-Taybi Parent Group (RTPG) is a voluntary, non-profit, self-help organization that is dedicated to providing information, assistance, and support to parents, healthcare professionals, and others who care for children with Rubinstein-Taybi syndrome (RTS).
https://www.facebook.com/rtssupportgroup
Rubinstein-Taybi Syndrome Support Group. 1,096 likes · 2 talking about this. This is the official site of the Rubinstein-Taybi Syndrome Support Group, which was set up to support UK families affected...Followers: 1.2K
https://www.ucucedd.org/wp-content/uploads/2019/02/CCHMC-Rubinstein-Taybi-Syndrome-booklet-FA_4-WEB.pdf
6 Understanding Rubinstein-Taybi Syndrome: A Guide for Families and Professionals Introduction The goal of this booklet is to provide families with accurate, up-to-date information about how to support their child with Rubinstein-Taybi syndrome (RTS) and to equip them with the tools to educate family members,
https://rubinstein-taybi.info/
We are a group of friends & family supporting those with Rubinstein-Taybi Syndrome. Through contact and conversation, we offer support and friendship to all …
http://forgottendiseases.org/assets/RubinsteinTaybi.html
Rubinstein-Taybi syndrome is a very rare genetic condition. One study in the Netherlands estimated that it affects 1 in 100,000 to 1 in 125,000 newborns in that country (1).
https://www.diseaseinfosearch.org/disease/6372/support
The Rubinstein-Taybi Parent Group USA was created to provide contact and information to those families and individuals dealing with RTS, and to provide information to …
https://rarediseases.org/organizations/rubinstein-taybi-syndrome-uk-support-group/
The Rubinstein-Taybi Syndrome UK Support Group has been offering support for a number of years to parents with children affected by Rubinstein-Taybi syndrome. Characteristic features of this syndrome include short stature, broad thumbs and/or great toes, facial abnormalities, and learning disabilities.
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