Searching for Prader Willi Support information? Find all needed info by using official links provided below.
https://www.pwsausa.org/family-support/
A family living with a child with Prader-Willi syndrome (PWS) faces some unique challenges. Remember, if you reach a particularly tough point, you can always call a Family Support Counselor to vent and perhaps think through some new strategies and responses to your situation and …
https://www.prader-willi.org/support#!
Local Support. If you are the parent of a child with Prader-Willi syndrome and you need to talk with another parent who shares your concerns, please call Nina Roberto (ext. 3) or Barbara McManus (ext. 2) at 800-442-1655 .
https://ghr.nlm.nih.gov/condition/prader-willi-syndrome
Oct 15, 2019 · Prader-Willi syndrome is a complex genetic condition that affects many parts of the body. In infancy, this condition is characterized by weak muscle tone (hypotonia), feeding difficulties, poor growth, and delayed development.
Prader-Willi California Foundation (PWCF) Since 1979 Prader-Willi California Foundation has been dedicated to supporting people with Prader-Willi syndrome, their families, and the professionals who serve them. PWCF is funded by donations, grants, membership dues, and …
https://pwcf.org/pwcf-support-groups/
PWCF encourages you to connect with and learn from other family members to the extent you feel comfortable. PWCF hosts in-person support and sharing groups that meet regularly in various cities in California. The national PWSA (USA) hosts online support and sharing groups that connect you to families all over the world. Whatever support option best fits you and your family, you never need to ...
https://www.facebook.com/groups/306690016074253/
Prader-Willi Support has 3,183 members. I wanted to create a group for people that have a loved one or know a loved one with Prader-Willi Syndrome (or...
Prader-Willi syndrome (PWS) is a rare, complex genetic disorder that affects both males and females from birth and throughout their lives.
https://www.praderwillicare.com/
Karen Balko is a registered dietitian with over 34 years of experience and 30 years working with individuals of all ages with Prader Willi Syndrome. Karen has been an advocate, nutrition coach and support person for individuals and their caregivers.
How to find Prader Willi Support information?
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