Searching for Porphyria Support Uk information? Find all needed info by using official links provided below.
https://porphyriafoundation.org/
"The American Porphyria Foundation has been my support group, my fountain of knowledge, my rock!" See All Member Stories. The APF Proudly Supports Nichole Zimmardo. Congenital Erythropoietic Porphyria "The APF has been our beacon in the ocean. It is our foundation of knowledge and support that has been helping us to better understand the CEP.
http://www.drugs-porphyria.org/languages/UnitedKingdom/index.php
The Norwegian Porphyria Centre is responsible for the development of this multi-language drug database.The UK national version of the porphyria drug database is based on the Read Codes and Drugs Appliance Directory (NHS Connecting for Health Services Support Unit) of medicines available in the UK.
http://www.porphyria.org.uk/get-information-support/
Our support team are ready to provide information, guidance and support to patients, families and medical professionals. Helpline: 0300 30 200 30 Email: [email protected]
https://britishlivertrust.org.uk/information-and-support/living-with-a-liver-condition/liver-conditions/porphyria/
Please visit the support section of our website for information on Support groups in your area or visit our Useful Links section for other organisations who may be able to offer information and support. Other organisations that may be able to offer further information are: …
https://www.dailystrength.org/group/porphyria
Nov 13, 2018 · Porphyria Support Group The porphyrias are inherited or acquired disorders of certain enzymes in the heme biosynthetic pathway (also called porphyrin pathway). The hepatic porphyrias primarily affect the nervous system, resulting in abdominal pain, vomiting, acute neuropathy, seizures, and mental disturbances, including hallucinations ...
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