Searching for Porphyria Support Forum information? Find all needed info by using official links provided below.
https://www.dailystrength.org/group/porphyria
Nov 13, 2018 · Porphyria Support Group. The porphyrias are inherited or acquired disorders of certain enzymes in the heme biosynthetic pathway (also called porphyrin pathway). The hepatic porphyrias primarily affect the nervous system, resulting in abdominal pain, vomiting, acute neuropathy, seizures, and mental disturbances, including hallucinations ...
https://porphyriafoundation.org/for-patients/support-assistance/
Support & Assistance. The American Porphyria Foundation provides many support and assistance programs for our members. These valuable resources are intended to guide patients and families that are impacted by Porphyria.
https://www.porphyriafoundation.org/for-patients/support-assistance/caregiver-support-forum/
The Caregiver Support Forum strives to provide a space to ask questions, share advice, experiences and provide a sounding board for those going through similar circumstances. We want to hear from you. Contact the American Porphyria Foundation or email us at [email protected] for more information.
https://www.diseasemaps.org/porphyria/forum/
Mar 31, 2019 · Porphyria forum - Questions about Porphyria - Ask a question and get answers from other users. Discover the new Porphyria forum. Advise and help others. Help us to help more people View more View more. ... Useful Porphyria resources. Blogs, …
http://theaipforum.tripod.com/
Welcome to "the Porphyria forum", a website designed to give you the basic information you need to know as you research this usually manageable disease. If you are new to Porphyria, or if you are just doing research on the latest findings, the latest research, and the latest group of online friends that serve as a support group -- well you are ...
https://www.facebook.com/groups/AmericanPorphyriaFoundation/
Official American Porphyria Foundation fb Support Group. Get The Facts! All fact based information provided for all of the APF fb Groups. The APF is dedicated to improving the health and well-being...
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