Searching for Phenylketonuria Support Organizations information? Find all needed info by using official links provided below.
https://www.thinkgenetic.com/diseases/phenylketonuria/organizations/17662
There are several support groups for people with phenylketonuria. The National PKU Alliance works to improve the lives of families and individuals associated with PKU through research, support, education and advocacy, while ultimately seeking a cure. The Children's PKU Network was founded in 1991 to address the special needs and concerns of individuals and families with PKU.
https://rarediseases.org/rare-diseases/phenylketonuria/
Treatment. The goal of treatment for PKU is to keep plasma phenylalanine levels within 120-360 umol/L (2-6 mg/dL). This is generally achieved through carefully planned and monitored diet.
The NPKUA was formed in 2008 by parents, grandparents, and individuals across the country just like you. We are all connected to PKU. We are the first national non-profit organization to unite adults, families, regional and statewide PKU organizations, the medical community and industry to make a difference in the lives of people with PKU.
https://www.diseaseinfosearch.org/disease/5714/support
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https://rarediseases.org/organizations/national-pku-alliance/
Description The National PKU Alliance is a voluntary, non-profit organization whose mission is to improve the lives of individuals and families associated with PKU through research, support, education and advocacy, while ultimately seeking a cure.
https://accredo.com/conditions/phenylketonuria
Phenylketonuria (PKU) is a rare genetic condition caused by the buildup of the amino acid phenylalanine. Amino acids are the building blocks of protein in the body. ... There are many organizations that support research and advocacy for Phenylketonuria. See below for a few of those organizations. Support Organizations. National PKU Alliance;
https://www.dailystrength.org/group/phenylketonuria-pku
Phenylketonuria (PKU) Support Group. Phenylketonuria [PKU] is a human genetic disorder, in which the body lacks phenylalanine hydroxylase, the enzyme necessary to metabolize phenylalanine to tyrosine.
https://www.nichd.nih.gov/health/topics/pku
Dec 01, 2016 · The NICHD, other branches of the NIH, and various scientific organizations continue working to better understand, diagnose, and treat PKU. Since NICHD was established, it has played a key role in PKU-related research, with its support of studies on the safety and effectiveness of a restricted diet to treat PKU and to prevent PKU-related IDD.
https://www.thinkgenetic.com/diseases/phenylketonuria/organizations/58928
Georgia PKU Connect is dedicated to Georgia's Phenylketonuria (PKU) community with a mission to connect PKU families and individuals with the support and resources they need to manage PKU and live healthy, productive lives.
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