Searching for Pku Support Forum information? Find all needed info by using official links provided below.
https://www.pku.com/community-and-support/pku-community-old
Join our phenylketonuria (PKU) community on Facebook. Watch how others manage their PKU. PKU twitter. Build a circle of support with others who understand life with PKU.
https://www.dailystrength.org/group/phenylketonuria-pku
Phenylketonuria (PKU) Support Group. Phenylketonuria [PKU] is a human genetic disorder, in which the body lacks phenylalanine hydroxylase, the enzyme necessary to metabolize phenylalanine to tyrosine. Left untreated, the disorder can cause brain damage and progressive mental retardation as a result of the accumulation of phenylalanine and its ...
https://www.pku.com/community-and-support/resources
Phenylketonuria (PKU) resources and advocacy groups. The American College of Medical Genetics and Genomics (ACMG) guidelines. Blood phenylalanine (Phe) control questionnaire. Methods for tracking Phe. Collect blood Phe at home. PKU care team contact sheet. PKU clinic discussion guide. PKU pantry table. National PKU Alliance (NPKUA). PKU toolkit.
https://www.pkuconnect.com.au/what-is-pku/pku-support-groups/
Forum Activity. September 13, 2019 Tips for PKU at school. April 15, 2019 Any 15 year olds with PKU want to connect? Latest Recipes ... August 9, 2017 Spring Rolls. PKU Connect > What is PKU > PKU Support Groups. PKU Support Groups. Tweet Get to know your Metabolic Community! Follow the links below to find out more about these PKU support ...
https://www.thinkgenetic.com/diseases/phenylketonuria/organizations/17662
The National PKU Alliance works to improve the lives of families and individuals associated with PKU through research, support, education and advocacy, while ultimately seeking a cure. The Children's PKU Network was founded in 1991 to address the special needs and concerns of individuals and families with PKU.
https://www.pkuboard.info/?l=2
International PKU Community, Recipes Database, Gallery, Events Database, Bloodlevel Tracking and Travel Network for Phenylketonuria
https://www.kuvan.com/support-resources/
BioMarin is committed to providing programs and resources to help support people with PKU and caregivers along their journeys with PKU. PKU.com—Join the PKU Community. PKU.com is an informative online resource for people living with PKU. Information about PKU and how it’s managed; Discussion forums where you can find friends in the PKU community
The National PKU Alliance (NPKUA) is a vital voice for the PKU community. We work towards expanding PKU research and accelerating the timeline for a cure by investing in peer-reviewed and targeted research. We provide education and support to people living with PKU.
http://adultswithpku.org/Back-to-Care
The National PKU Alliance works to improve the lives of families and individuals associated with PKU through research, support, education, and advocacy, while ultimately seeking a cure.
https://www.facebook.com/groups/PKUworldwidesupport/
Phenylketonuria (PKU) World Wide Support Group! has 7,124 members. *To be added to our group, you must answer the 3 Questions on the request to join page...
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