Searching for Neurofibromatosis Support Organizations information? Find all needed info by using official links provided below.
The Neurofibromatosis Network is the leading national organization advocating for federal funding for NF research and building and supporting NF communities.
https://www.nfnetwork.org/community/local-groups/
The Neurofibromatosis Network is the leading national organization advocating for federal funding for NF research and building and supporting NF communities.
https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/neurofibromatosis/patient-information/support_groups.html
Support Groups. Many people and families with neurofibromatosis or schwannomatosis appreciate being in touch with other people who are similarly affected. The following is a list of support services which can help the patient and family members cope with the emotional and practical issues being faced.
https://www.inspire.com/groups/neurofibromatosis-network/
The Neurofibromatosis Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Neurofibromatosis Network, an Inspire trusted partner.
https://rarediseases.org/organizations/neurofibromatosis-network/
The Neurofibromatosis, Inc., is a national, voluntary, non-profit organization dedicated to providing information, support, and advocacy to individuals and family members affected by neurofibromatosis type I (NF1) and type II (NF2).
https://www.dailystrength.org/group/neurofibromatosis
Neurofibromatosis Support Group. Neurofibromatosis is usually noncancerous. There are three types of this condition. Type 1 usually appears in childhood, while Types 2 and 3 appear in early adulthood. Type 1 can cause bone deformities, learning disabilities, and high blood pressure. Type 2 can cause hearing loss, vision loss, and difficulty ...
The Texas Neurofibromatosis Foundation ® a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.
https://www.nfmidwest.org/
Improving the Lives of People with Neurofibromatosis. Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and ...
Since its formation, the Children’s Tumor Foundation has been crucial to the development of solid scientific data about the genetic disorder neurofibromatosis (NF). Thanks to the generosity of our donors and supporters, we are breaking through barriers …
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