Searching for Goldenhar Syndrome Support information? Find all needed info by using official links provided below.
http://www.goldenharsyndrome.org/
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https://www.goldenhar.org.uk/
Goldenhar Syndrome is an ‘umbrella’ term for a wide range of bone abnormalities affecting the face and sometimes the vertebrae. ... We're a small UK based charity setup to help and support families affected by Goldenhar Syndrome, Hemifacial Microsomia and Microtia. How to Donate. Your contribution is very valuable to us and we thank you for ...
http://www.faces-cranio.org/Disord/Golden.htm
We provide financial support for non-medical expenses to patients traveling to a craniofacial center for treatment. Eligibility is based on financial and medical need. Resources include newsletters, information about craniofacial conditions, and networking opportunities. Goldenhar Syndrome Support Network 9325 …
https://www.chop.edu/conditions-diseases/goldenhar-syndrome
Goldenhar syndrome is a rare congenital condition characterized by abnormal development of the eye, ear and spine. Children with Goldenhar syndrome are born with partially formed or totally absent ears, benign growths of the eye, and spinal deformities such as scoliosis. Goldenhar is also known as oculo-auriculo-vertebral spectrum or OAV, and affects one in every 3,000-5,000 births.
https://rarediseases.org/organizations/goldenhar-syndrome-support-network-society/
The Goldenhar Syndrome Support Network is a program of Ameriface, a GSSN is a non-profit organization dedicated to providing support and information to families and individuals affected by Goldenhar syndrome and its associated conditions. Goldenhar syndrome, often used synonymously with oculo-auriculo-vertebral (OAV) spectrum, is a rare ...
https://rarediseases.org/organizations/goldenhar-family-support-group/
The Goldenhar Family Support Group is a voluntary organization in the United Kingdom dedicated to supporting families of children with Goldenhar syndrome, a rare disorder that is apparent at birth (congenital). Goldenhar syndrome, a term that is often used synonymously with "Oculo-Auriculo-Vertebral (OAV) Spectrum," is characterized by symptoms ...
http://www.goldenharsyndrome.org/resources.html
Resources. About Goldenhar Syndrome. Conditions Associated with Goldenhar Syndrome. Cleft/Craniofacial Teams. State Resource Guide (Includes Medical Financing Links) Pathfinder Partner Organizations. The Journey. Feeding and Nutrition. ... The Goldenhar Syndrome Support Network is …
https://rarediseases.info.nih.gov/diseases/6540/goldenhar-disease
67 rows · May 22, 2017 · Goldenhar disease is a condition that is present at birth and mainly affects …
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3667321/
Goldenhar syndrome (oculoauriculovertebral dysplasia with hemifacial microsomia) is a rare congenital anomaly involving the first and second branchial arches. It is a disorder where the patient's facial features are incompletely developed on one side, resulting in eye, ear, and jaw abnormalities.
https://www.cde.state.co.us/cdesped/sd-db_factsheetwp_goldenhar
A few families in which Goldenhar syndrome occurs show an autosomal recessive inheritance pattern, while other families clearly support an autosomal dominant pattern of inheritance. However, most cases of Goldenhar syndrome are not inherited, meaning that it does not normally run in families. Goldenhar syndrome typically occurs randomly.
How to find Goldenhar Syndrome Support information?
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