Searching for Goldenhar Syndrome Support Australia information? Find all needed info by using official links provided below.
http://www.geneticalliance.org.au/conditions_detail.php?Goldenhar-Syndrome-230
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http://www.faces-cranio.org/Disord/Golden.htm
Goldenhar Syndrome is a congenital birth defect which involves deformities of the face. It usually affects one side of the face only. Characteristics include: A partially formed or totally absent ear (microtia) The chin may be closer to the affected ear. One corner of the mouth may be higher than the other.
https://rarediseases.org/organizations/goldenhar-family-support-group/
The Goldenhar Family Support Group is a voluntary organization in the United Kingdom dedicated to supporting families of children with Goldenhar syndrome, a rare disorder that is …
https://www.chop.edu/conditions-diseases/goldenhar-syndrome
Goldenhar syndrome is a rare congenital condition characterized by abnormal development of the eye, ear and spine. Children with Goldenhar syndrome are born with partially formed or totally absent ears, benign growths of the eye, and spinal deformities such as scoliosis.
http://www.goldenharsyndrome.org/
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https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3667321/
Goldenhar syndrome (oculoauriculovertebral dysplasia with hemifacial microsomia) is a rare congenital anomaly involving the first and second branchial arches. It is a disorder where the patient's facial features are incompletely developed on one side, resulting in eye, ear, and jaw abnormalities.
http://www.rarevoices.org.au/page/26/a-z-of-support-organisations
Below is an A-Z list of rare disease patient organisations. Please note that RVA does not necessarily endorse or monitor each group's operational governance. If you have searched our A-Z directory list of rare disease patient organisations and can't find a support group, it may be that a group doesn't currently exist that suits your needs.
https://en.wikipedia.org/wiki/Goldenhar_syndrome
Goldenhar syndrome is a rare congenital defect characterized by incomplete development of the ear, nose, soft palate, lip and mandible on usually one side of the body. Common clinical manifestations include limbal dermoids, preauricular skin tags and strabismus.Specialty: Medical genetics
https://rarediseases.info.nih.gov/diseases/6540/goldenhar-disease
May 22, 2017 · Goldenhar disease is a condition that is present at birth and mainly affects the development of the eye, ear, and spine. The main sign and symptoms are facial asymmetry (one side of the face is different from the other), a partially formed ear ( microtia ) or totally absent ear (anotia), noncancerous (benign) growths of the eye ( ocular dermoid cysts ), and spinal abnormalities.
How to find Goldenhar Syndrome Support Australia information?
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