Searching for Fragile X Syndrome Support information? Find all needed info by using official links provided below.
https://fragilex.org/living-with-fragile-x/community-support/
Fragile X Clinic & Research Consortium: If you are seeking medical support related to Fragile X, locate a Fragile X Clinic. The FXCRC is partnered with the CSN to bring you both the emotional and medical support that you need. Community Partners. Community partners are independent, tax exempt organizations that collaborate with the NFXF to ...
https://www.thinkgenetic.com/diseases/fragile-x-syndrome/organizations/18044
What support groups are there for fragile X syndrome? Helpful support groups and resources for fragile X syndrome include: National Fragile X Foundation ( www.fragilex.org )
https://www.dailystrength.org/group/fragile-x-syndrome
Fragile X Syndrome is the most common inherited cause of mental retardation, and is associated with autism. The fragile X syndrome is a genetic disorder caused by mutation of the FMR1 gene on the X chromosome. Mutation at that site is found in 1 out of about every 4000 males and …
https://www.healthychildren.org/English/health-issues/conditions/developmental-disabilities/Pages/Fragile-X-Syndrome-Information-for-Parents.aspx
May 25, 2016 · Consider joining a local group of FXS families to share information and support each other. Additional Information & Resources: Fragile X Syndrome Myth Busters for Patients & Families (PDF) Children with Intellectual Disabilities. Ethical and Policy Issues in Genetic Testing and Screening of Children (AAP Policy Statement)
https://rarediseases.org/rare-diseases/fragile-x-syndrome/
There are many treatments for fragile X syndrome that can improve the lives of affected individuals and their families. These include special education, speech, occupational, and sensory integration training, and behavior modification programs. With educational efforts, therapy, and support, all individuals with fragile X syndrome can make ...
https://www.cdc.gov/ncbddd/fxs/facts.html
Fragile X syndrome (FXS) is a genetic disorder. A genetic disorder means that there are changes to the person’s genes. FXS is caused by changes in the fragile X mental retardation 1 (FMR1) gene. The FMR1 gene usually makes a protein called fragile X mental retardation protein (FMRP).
https://www.ourfragilexworld.org/resources-for-families
National Fragile X Foundation. The National Fragile X Foundation is a nonprofit organization that unites the fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for fragile X syndrome.
https://www.webmd.com/children/what-is-fragile-x-syndrome
Fragile X Syndrome is an inherited disorder caused by genetics that affects a child's learning, behavior, appearance, and health. Learn more about the symptoms, causes, diagnosis, and treatment of ...
https://ghr.nlm.nih.gov/condition/fragile-x-syndrome
Oct 29, 2019 · Fragile X syndrome is a genetic condition that causes a range of developmental problems including learning disabilities and cognitive impairment. Usually, males are more severely affected by this disorder than females. Affected individuals usually have delayed development of speech and language by age 2.
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