Fragile X Syndrome Support Forum

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Community Support Network National Fragile X Foundation

    https://fragilex.org/living-with-fragile-x/community-support/
    The National Fragile X Foundation supports families living with Fragile X through community, awareness and education, and research. We provide help for today and hope for tomorrow. Together we can do more. Learn more about how we can help.

Fragile X Syndrome Support Groups Online DailyStrength

    https://www.dailystrength.org/group/fragile-x-syndrome
    Fragile X Syndrome Support Group Fragile X Syndrome is the most common inherited cause of mental retardation, and is associated with autism. The fragile X syndrome is a genetic disorder caused by mutation of the FMR1 gene on the X chromosome.

The National Fragile X Foundation Fragile X Syndrome

    https://fragilex.org/
    The National Fragile X Foundation supports families living with Fragile X through community, awareness and education, and research. We provide help for today and hope for tomorrow. Together we can do more. Learn more about how we can help.

Fragile X syndrome symptoms, treatments & forums ...

    https://www.patientslikeme.com/conditions/fragile-x-syndrome-fragile-x-syndrome
    Fragile X syndrome is a genetic condition characterized as changes on the X chromosome. Some signs and symptoms include a long face, prominent ears, developmental delay, and social and behavioral issues.

Organizations: What support groups are there for fragile X ...

    https://www.thinkgenetic.com/diseases/fragile-x-syndrome/organizations/18044
    What support groups are there for fragile X syndrome? Helpful support groups and resources for fragile X syndrome include: National Fragile X Foundation ( www.fragilex.org )

Fragile X Syndrome » Adoption Community

    https://adoption.com/forums/thread/393123/fragile-x-syndrome/
    Feb 13, 2013 · Fragile X is not as scary as it sounds. I work with developmentally disabled adults and they are some of the most amazing people I know. With a good support system, you special baby will achieve great things.

Can anyone talk to me about Fragile X Syndrome? Mumsnet

    https://www.mumsnet.com/Talk/special_needs/1273507-Can-anyone-talk-to-me-about-Fragile-X-Syndrome
    Totally awesome, funny, cheeky, amazing, loving, caring, friendly... Fragile X is actually the most common cause of inherited LD. Mostly affecting boys (about 1/6000). Girls tend to be milder with the odd exception (about 1/12000) Mine were diagnosed at aged 2, eldest and 13 months youngest so I've...

Education Supports gemssforschools.org

    https://www.gemssforschools.org/conditions/fragile-x/ed-supports
    In boys who have fragile X syndrome full mutation, there may be: A strength in verbal and memory for meaningful information in context (i.e. pictures) Difficulty with the pragmatics of conversation. This is affected by physical, oral motor attention and behavioral issues. Girls with fragile X syndrome full mutation: Have many good verbal skills.

Fragile x syndrome - September 2015 Babies Forums What ...

    https://community.whattoexpect.com/forums/september-2015-babies/topic/fragile-x-syndrome-49.html
    I just got my genetic testing back and they said I am a carrier for fragile x syndrome. My result was 58. The genetic counselor said that in all the research results in the 55-59 range have never resulted in an affected child. The only way to know for sure if the baby is affected is to do a cvs or amnio...

Fragile X Syndrome: Symptoms, Causes, Diagnosis, and Treatment

    https://www.webmd.com/children/what-is-fragile-x-syndrome
    Fragile X Syndrome is an inherited disorder caused by genetics that affects a child's learning, behavior, appearance, and health. Learn more about the symptoms, causes, diagnosis, and treatment of ...



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