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Fragile X syndrome (FXS) is a genetic condition that causes intellectual disability, behavioral and learning challenges, and various physical characteristics. Though FXS occurs in both genders, males are more frequently affected than females, and generally with greater severity.
https://www.cdc.gov/ncbddd/fxs/facts.html
Connect with a Community Support Network (CSN) external icon at the National Fragile X Foundation. CSNs are organized and run by parent volunteers and provide support to families. References. Hunter J, Rivero-Arias O, Angelov A, Kim E, Fotheringham I, Leal J. Epidemiology of fragile X syndrome: a systematic review and meta-analysis.
https://www.thinkgenetic.com/diseases/fragile-x-syndrome/organizations/18044
What support groups are there for fragile X syndrome? Helpful support groups and resources for fragile X syndrome include: National Fragile X Foundation ( www.fragilex.org )
https://www.friendshipcircle.org/blog/2012/08/14/12-important-resources-for-families-with-fragile-x-syndrome/
Aug 14, 2012 · For parents of a child with Fragile X Syndrome, a leading cause of autism and intellectual disabilities, the storm may seem to rage on and on. To help you get though the tough times we have provided a list of 12 must have Fragile X resources.
https://www.kaleidahealth.org/services/docs/childrens/ecdc/WNY-Support-Group-Directory.pdf
WNY SUPPORT GROUP DIRECTORY 2016 The Support Group Directory is a resource for individuals with disabilities and their families, as well as service providers. This directory contains a wide variety of groups off ering a range of supports. It can point you in the right direction, but …
https://www.mencap.org.uk/learning-disability-explained/conditions-linked-learning-disability/fragile-x-syndrome
Living with Fragile X. Most people with Fragile X will need support with their speech and language, and with social and emotional interaction with others. Some people with Fragile X also develop epilepsy, and a few have autism. This may also have an impact on the kind of support they need, both as a …
https://www.healthychildren.org/English/health-issues/conditions/developmental-disabilities/Pages/Fragile-X-Syndrome-Information-for-Parents.aspx
May 25, 2016 · Consider joining a local group of FXS families to share information and support each other. Additional Information & Resources: Fragile X Syndrome Myth Busters for Patients & Families (PDF) Children with Intellectual Disabilities. Ethical and Policy Issues in Genetic Testing and Screening of Children (AAP Policy Statement)
https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/fragile-x-syndrome
Fragile X syndrome is a genetic disorder caused by a change to one of the genes on the X chromosome. It is the most common inherited cause of intellectual disability. Fragile X syndrome is also linked to features of autism spectrum disorder. Fragile X syndrome affects around 1 in 3,600 boys and between 1 in 4,000 – 6,000 girls.
https://www.webmd.com/children/what-is-fragile-x-syndrome
Fragile X Syndrome is an inherited disorder caused by genetics that affects a child's learning, behavior, appearance, and health. Learn more about the symptoms, causes, diagnosis, and treatment of ...
http://fragilexireland.org/
Welcome to the Irish Fragile X Society (IFXS) Online. Welcome to the Irish Fragile X Society (IFXS) online. We hope you will find this site informative and helpful, whether you are a parent/carer, a teacher, or other professional working with an individual affected by Fragile X syndrome.
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