Searching for Fragile X Support information? Find all needed info by using official links provided below.
https://www.dailystrength.org/group/fragile-x-syndrome
Fragile X Syndrome Support Group Fragile X Syndrome is the most common inherited cause of mental retardation, and is associated with autism. The fragile X syndrome is a genetic disorder caused by mutation of the FMR1 gene on the X chromosome.
https://fragilex.org/living-with-fragile-x/community-support/
Fragile X Clinic & Research Consortium: If you are seeking medical support related to Fragile X, locate a Fragile X Clinic. The FXCRC is partnered with the CSN to bring you both the emotional and medical support that you need. Community Partners. Community partners are independent, tax exempt organizations that collaborate with the NFXF to support the Fragile X Community, raise awareness, …
https://www.webmd.com/children/what-is-fragile-x-syndrome
The FMR1 gene, which is on the X chromosome, makes a protein called FMR that helps nerve cells talk to one another. A child needs this protein for his brain to develop normally. Children with...
https://www.friendshipcircle.org/blog/2012/08/14/12-important-resources-for-families-with-fragile-x-syndrome/
Aug 14, 2012 · The National Fragile X Foundation is active in Public Policy and Legislative Advocacy for individuals with Fragile X. In addition they run a national Fragile X Conference that attracts thousand of people. NFXF also provides resources for treatment and intervention for the Fragile X Community.
https://www.cdc.gov/ncbddd/fxs/facts.html
Contact the National Fragile X Foundation at 1-800-688-8765 or [email protected] to get information about treatments, educational strategies, therapies and intervention. Connect with a Community Support Network (CSN) external icon at the National Fragile X Foundation. CSNs are organized and run by parent volunteers and provide support to families.
https://ghr.nlm.nih.gov/condition/fragile-x-syndrome
Oct 29, 2019 · Children with fragile X syndrome may also have anxiety and hyperactive behavior such as fidgeting or impulsive actions. They may have attention deficit disorder (ADD), which includes an impaired ability to maintain attention and difficulty focusing on specific tasks.
https://rarediseases.org/rare-diseases/fragile-x-syndrome/
There are many treatments for fragile X syndrome that can improve the lives of affected individuals and their families. These include special education, speech, occupational, and sensory integration training, and behavior modification programs. With educational efforts, therapy, and support, all individuals with fragile X syndrome can make progress.
https://fragilex.org/living-with-fragile-x/life-strategies/resources/
The National Fragile X Foundation supports families living with Fragile X through community, awareness and education, and research. We provide help for today and hope for tomorrow. Together we can do more. Learn more about how we can help.
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