Searching for Fragile X Family Support information? Find all needed info by using official links provided below.
https://fragilex.org/living-with-fragile-x/life-strategies/resources/
Support our mission to provide support for every family affected by Fragile X, and someday—a cure. DONATE. About. ... Thank you for considering a donation today to help support Fragile X families, provide education, and facilitate research toward treatments and a cure. Donors like you help us provide these services to everyone, free-of-charge.
https://www.friendshipcircle.org/blog/2012/08/14/12-important-resources-for-families-with-fragile-x-syndrome/
Aug 14, 2012 · 12 Important Resources for Families with Fragile X Syndrome Being a parent to a child with a disability, any disability, is like day after day of guiding your family’s boat through a constant storm.
https://www.healthychildren.org/English/health-issues/conditions/developmental-disabilities/Pages/Fragile-X-Syndrome-Information-for-Parents.aspx
May 25, 2016 · Fragile X syndrome (FXS) is one ... or a history of early menopause or fertility problems in women on the mother's side of the family. These are symptoms of fragile X-associated disorders, which suggest that FXS could run in the family. ... Consider joining a local group of FXS families to share information and support each other.
https://www.cdc.gov/ncbddd/fxs/facts.html
Connect with a Community Support Network (CSN) external icon at the National Fragile X Foundation. CSNs are organized and run by parent volunteers and provide support to families. References. Hunter J, Rivero-Arias O, Angelov A, Kim E, Fotheringham I, Leal J. Epidemiology of fragile X syndrome: a systematic review and meta-analysis.
https://www.fragilex.org.uk/family-support-workers
Caroline is the Society's Families and Professionals Advisor managing enquiries relating to children with Fragile X. Caroline joined the Fragile X Society in 2018, but has worked in the voluntary sector now for over 25 years supporting families.
https://www.fragilex.org.au/understanding-fragile-x/
Fragile X Association of Australia is a registered charity, funded by donations and fundraising. Donations of $2.00 and over are tax deductible. Your donation will help us support families affected by Fragile X, and to increase awareness of Fragile X associated conditions. Make a donation
The National Fragile X Foundation supports families living with Fragile X through community, awareness and education, and research. We provide help for today and hope for tomorrow. Together we can do more. Learn more about how we can help.
https://www.fragilex.org.uk/
We provide information and practical guidance to support and empower individuals and families living with Fragile X, and the professionals who support them. Growing up with Fragile X: one family's story We need your help for Jeans for Genes Day! Bridie's Fabulous Fashion Show! Latest News ...
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