Searching for Duchenne Support information? Find all needed info by using official links provided below.
The Duchenne Family Support Group (DFSG) exists to provide support for families with children diagnosed as having Duchenne Muscular Dystrophy (DMD). The DFSG is a national charity run by families for families affected by DMD. It provides a positive national support network of parents, their families and professionals. The DFSG helps bring families together for mutual support, sharing of …
https://www.duchenne.com/contact
Contact us for more information about Sarepta Duchenne support, clinical trials, and company information. Informational line: 1-888-SAREPTA.
https://news.harvard.edu/gazette/story/2020/01/major-study-on-duchenne-muscular-dystrophy-gains-support/
Jan 09, 2020 · Duchenne muscular dystrophy is a genetic disease caused by the lack of a protein called dystrophin that normally helps support the structural integrity of muscle fibers, including those in the heart. Without dystrophin, cells are weaker and degenerate more quickly.
https://www.duchennexchange.org/blog/how-to-support-a-duchenne-parent/
Support is Essential Finding support as a Duchenne parent is hard, but essential to our sanity. Very few people walk this path, which makes this journey lonely at times. Few people understand what it’s like to have a child with a degenerative disease.
https://www.mdjunction.com/duchenne-muscular-dystrophy
The Duchenne Muscular Dystrophy Support Group is a community of patients, family members and friends dedicated to dealing with Duchenne muscular dystrophy, together.
https://www.webmd.com/children/duchenne-muscular-dystrophy
Getting Support. To learn more about Duchenne muscular dystrophy or find a support group in your area, visit: Cure Duchenne, the Muscular Dystrophy Association, or the Parent Project Muscular ...Author: Stephanie Watson
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