Duchenne Muscular Dystrophy Family Support

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The Duchenne Family Support Group - DFSG

    https://www.dfsg.org.uk/
    The Duchenne Family Support Group (DFSG) exists to provide support for families with children diagnosed as having Duchenne Muscular Dystrophy (DMD). The DFSG is a national charity run by families for families affected by DMD. It provides a positive national support network of parents, their families and professionals. The DFSG helps bring families together for mutual support, sharing of ...

Support and Resources Duchenne Muscular Dystrophy ...

    https://www.jessesjourney.com/family-support-resources/
    If someone in your family has been diagnosed with Duchenne muscular dystrophy your first instinct will likely be to seek out information on available treatments and other available support services. There’s no question that hearing the diagnosis of DMD is difficult news and can be very overwhelming.

Duchenne Family Support Group (DFSG) - Muscular Dystrophy UK

    https://www.musculardystrophyuk.org/get-the-right-care-and-support/people-and-places-to-help-you/someone-to-talk-to/support-groups/dfsg/
    The Duchenne Family Support Group (DFSG) was set up in 1987 to provide support for families with children diagnosed with Duchenne muscular dystrophy. The DFSG is a national charity run by families for families affected by Duchenne muscular dystrophy. It provides a positive national support network of parents, their families and professionals.

What is Duchenne Muscular Dystrophy - Duchenne and You

    https://duchenneandyou.com/
    Duchenne and You is a resource dedicated to those who have had their lives touched by Duchenne muscular dystrophy. Whether your child or loved one has been diagnosed with Duchenne, or you are worried that they might be showing symptoms, you have come to the right place

Request Services Muscular Dystrophy Association

    https://www.mda.org/care/request-services
    To request services or support, please complete this short form and one of our trained MDA Resource Specialists will contact you. Or, call us directly at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA services are only available in the U.S.

Directory of Duchenne Muscular Dystrophy Resources ...

    https://www.duchenne.com/resources
    The mission of the Jett Foundation is to build awareness of Duchenne muscular dystrophy and fulfill the unmet needs in our community through programming, education, support, and research. Muscular Dystrophy Association (MDA) The MDA is leading the fight to free individuals - and the families who love them - from the harm of muscular dystrophy ...

CureDuchenne Finding a cure for Duchenne Caring for ...

    https://www.cureduchenne.org/
    CureDuchenne is the global leader in research, patient care and innovation for improving & extending the lives of children with Duchenne muscular dystrophy.



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