Searching for Congenital Heart Disease Support Parents information? Find all needed info by using official links provided below.
https://www.cdc.gov/ncbddd/heartdefects/links.html
Nov 12, 2019 · CDC provides technical assistance to the Congenital Heart Public Health Consortium, a unique collaboration that brings together families, experts, and organizations to address congenital heart defects through surveillance, research, education, health promotion, and policy development. Cove Point Foundation: Congenital Heart Disease external icon
https://blog.americanmedical-id.com/2018/02/chd-support-groups-organizations-heart-families/
Parents whose children are diagnosed with CHD are presented with unique challenges such as becoming an expert and advocate, dealing with finances, and finding support. Study shows that parents of children with Congenital Heart Disease prefer more information than cardiologists provide. List of CHD Support Groups for CHD Parents and Families
https://supportnetwork.heart.org/connect-with-people-like-me/congenital-heart-defect/chd-child/
Recovery happens here. Connect with families and caregivers of children experiencing congenital heart defects in our forum. Get emotional support. Join the community and …
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1768183/
The knowledge of one’s own disease is an important determinant of health related behaviour. 1 Much effort has therefore been devoted to educating patients with chronic diseases in an attempt to change their health behaviour and maximise their health benefits. 2 For children with congenital heart disease, parents’ knowledge about their child’s heart disease, treatment, and prevention of ...Cited by: 91
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4852017/
Oct 07, 2015 · Correlation between congenital heart disease (CHD) severity (complex versus simple) and level of impact of the disease on the parents’ quality of life. Impact of CHD on exclusive care-givers Descriptive statistics revealed that in most cases (87.2%) mothers were the only care-giver for the afflicted child (group A).Cited by: 5
https://www.heart.org/en/health-topics/congenital-heart-defects
About Congenital Heart Defects. The word “congenital” means existing at birth. The terms “congenital heart defect” and “congenital heart disease” are often used to mean the same thing, but “defect” is more accurate. A congenital heart defect (CHD) results when the heart, or blood vessels near the heart, don’t develop normally ...
https://www.littlehearts.org/
Little Hearts, Inc. is a national organization dedicated to providing support, education, resources, networking, and hope to families affected by congenital heart defects. Membership consists of families nationwide who have or are expecting a child with a congenital heart defect.
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