Searching for Wolf Hirschhorn Syndrome Support information? Find all needed info by using official links provided below.
https://ghr.nlm.nih.gov/condition/wolf-hirschhorn-syndrome
Oct 29, 2019 · Wolf-Hirschhorn syndrome can also cause abnormalities of the eyes, heart, genitourinary tract, and brain. A condition called Pitt-Rogers-Danks syndrome has features that overlap with those of Wolf-Hirschhorn syndrome. Researchers now recognize that these two conditions are actually part of a single syndrome with variable signs and symptoms.
http://wolfhirschhorn.org/
Wolf-Hirschhorn Syndrome comes in varying levels of severity depending on the size and location of the chromosome deletion. For most parents and families looking to find information on Wolf-Hirschhorn Syndrome, this site provides a real insight into the children, the families, the challenges and the prognosis of this rare condition.
https://www.webmd.com/children/wolf-hirschorn-syndrome
Wolf-Hirschhorn syndrome is a rare genetic condition caused when part of chromosome 4 is deleted during a baby’s development. Find out if it can be prevented and treated.
“Welcome to the Wolf Hirschhorn Syndrome Trust (WHST) website. The Trust is a registered charity and was formed in 1994 by a group of parents. The original Support Group was started by the late Chris Hilder, a woman who had great tenacity and vision.
https://www.geneticsupport.org/genetics-pregnancy/commonly-tested-for-prenatal-conditions/microdeletion-syndromes/732-2/
People with Wolf-Hirschhorn syndrome can have loving relationships with friends and family, and learn and make progress in their social skills and communication at their own pace. Most individuals with Wolf-Hirschhorn syndrome will need support and care over their lifetime given the related medical issues. What causes Wolf-Hirschhorn syndrome?
https://rarediseases.org/organizations/4p-support-group/
They provide education, advocacy, a newsletter and a listserv, and hold bi-annual national conferences. 4p-syndrome, also known as Wolf-Hirschhorn syndrome (WHS). is an extremely rare chromosomal disorder in which there is a deletion of a portion of the 4th chromosome.
http://wolf-hirschhornsyndrome.com/onlinestore/
We are happy to ship orders to locations outside of the United States. To insure international shipping charges are calculated correctly, please contact [email protected] prior …
https://www.diseaseinfosearch.org/disease/7518
Wolf-Hirschhorn syndrome is a genetic condition that causes unique facial features, delays in development, and learning issues (intellectual disability). The facial features include a high forehead, broad nasal bridge, wide-set eyes, abnormally shaped ears, and a small head (microcephaly).
https://rarediseases.info.nih.gov/diseases/7896/wolf-hirschhorn-syndrome
123 rows · Apr 28, 2017 · Wolf-Hirschhorn syndrome (WHS) is a genetic disorder that affects many …
https://www.ncbi.nlm.nih.gov/books/NBK1183/
Apr 29, 2002 · Wolf-Hirschhorn syndrome (WHS) is characterized by typical craniofacial features in infancy consisting of ‘Greek warrior helmet’ appearance of the nose (wide bridge of the nose continuing to the forehead), microcephaly, high anterior hairline with prominent glabella, widely spaced eyes, epicanthus, highly arched eyebrows, short philtrum, downturned corners of the mouth, micrognathia, …Cited by: 19
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