Searching for Tuberous Sclerosis Parent Support information? Find all needed info by using official links provided below.
https://www.inspire.com/groups/tuberous-sclerosis-alliance/
The Tuberous Sclerosis Alliance Support Community connects everyone affected by tuberous sclerosis complex for support and inspiration. This community is sponsored by the Tuberous Sclerosis Alliance, an Inspire trusted partner. More about this community
https://www.tsalliance.org/
What is Tuberous Sclerosis Complex? TSC is a genetic disorder that causes tumors to form in various organs, primarily the brain, eyes, heart, kidneys, skin and lungs.
https://www.nhs.uk/conditions/tuberous-sclerosis/
The parent carrying the faulty gene will also have tuberous sclerosis, although sometimes it may be so mild they do not realise. How tuberous sclerosis is treated. There is no cure for tuberous sclerosis, but there is a range of treatments for many of the problems caused by the condition. For example:
http://tuberous-sclerosis-complex.net/parents/
Tuberous Sclerosis is a genetic disease, generally with random distribution, with no parental age effect.. TSC is a rare disease, but it is not exceptional because its frequency is about 1 case in 6,000 births. About 60,000 people are affected by the disease in Europe, about as much in the United States and probably more than two millions worldwide.
https://www.tuberous-sclerosis.com/tools/sign-up/
Join our tuberous sclerosis support system, called TSC Life, to receive news, insights from doctors, and tips on living with TSC.
https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Tuberous-Sclerosis-Fact-Sheet
Aug 13, 2019 · What is Tuberous Sclerosis? Tuberous sclerosis--also called tuberous sclerosis complex (TSC) 1--is a rare, multi-system genetic disease that causes benign tumors to grow in the brain and on other vital organs such as the kidneys, heart, eyes, lungs, and skin.It usually affects the central nervous system and results in a combination of symptoms including seizures, developmental delay ...
https://ghr.nlm.nih.gov/condition/tuberous-sclerosis-complex
Oct 15, 2019 · Tuberous sclerosis complex is a genetic disorder characterized by the growth of numerous noncancerous (benign) tumors in many parts of the body. These tumors can occur in the skin, brain, kidneys, and other organs, in some cases leading to significant health problems.
https://kidshealth.org/en/parents/tuberous-sclerosis.html
For most, tuberous sclerosis won't affect their life span. If your child has tuberous sclerosis, you don't have to go it alone. Look for an online or local support group, like the Tuberous Sclerosis Alliance, where you can connect with other families dealing with tuberous sclerosis.
How to find Tuberous Sclerosis Parent Support information?
Follow the instuctions below:
- Choose an official link provided above.
- Click on it.
- Find company email address & contact them via email
- Find company phone & make a call.
- Find company address & visit their office.
