Sotos Syndrome Support

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Sotos Syndrome Support Association

    https://sotossyndrome.org/
    Sotos syndrome Support Association (SSSA) is made up of families, physicians, genetic counselors, and health care agencies throughout the United States. The SSSA is a non-profit organization which is incorporated in the state of Missouri. read more.

Contact Us Sotos Syndrome Support Association

    https://sotossyndrome.org/contact-us
    Sotos Syndrome Support Association Awareness and Understanding through Education and Support

About Us Sotos Syndrome Support Association

    https://sotossyndrome.org/about
    Organized in 1988, the Sotos syndrome Support Association (SSSA) is made up of families, physicians, genetic counselors, and health care agencies throughout the United States and the world. The SSSA is a nonprofit 501(c)(3) organization which is incorporated in the …

Sotos Syndrome Support Association - Home Facebook

    https://www.facebook.com/SotosSyndromeSupportAssociation/
    PlacesWheaton, IllinoisCommunity OrganizationCharity OrganizationSotos Syndrome Support Association. Our son has a unique mutation on NSD1 and knowing what Soto’s síndrome is, outcomes, strategies and ...other people inputs helped us tremendously on medical and support decisions.5/5(25)

Sotos Syndrome: An Educational Guide

    http://childgrowthfoundation.org/wp-content/uploads/2018/07/Sotos-Syndrome-Educational-Guide.pdf
    Sotos syndrome. A few individuals will have average intellectual ability whilst some may have more severe intellectual disability. For children with Sotos syndrome, approximately 50% attend special educational needs schools and the remaining 50% attend mainstream schools but often require additional support. Determining the appropriate school for a

Support – Sotos Syndrome Australasia

    https://sotos.org.au/support/
    Support There are a variety of supports available to assist people living with Sotos Syndrome to live independently, find employment and connect with other people or families affected by Sotos Syndrome.

Sotos Syndrome Support Group of Canada - SSSAC

    http://sssac.com/
    The Sotos Syndrome Support Association of Canada / Association Canadienne d'Entraide du Syndrôme de Sotos was formed to provide educational and emotional support, and current information.

Sotos syndrome - Genetics Home Reference - NIH

    https://ghr.nlm.nih.gov/condition/sotos-syndrome
    Oct 29, 2019 · A small percentage of people with Sotos syndrome have developed cancer, most often in childhood, but no single form of cancer occurs most frequently with this condition. It remains uncertain whether Sotos syndrome increases the risk of specific types of cancer. If people with this disorder have an increased cancer risk, it is only slightly greater than that of the general population.



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