Proteus Syndrome Support

Searching for Proteus Syndrome Support information? Find all needed info by using official links provided below.


Proteus Syndrome Foundation - Support and Education

    https://www.proteus-syndrome.org/
    The Proteus Syndrome Foundation, a 501c3 not-for-profit organization, is dedicated improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with …

Proteus syndrome - Genetics Home Reference - NIH

    https://ghr.nlm.nih.gov/condition/proteus-syndrome
    Oct 29, 2019 · Proteus syndrome is a rare condition characterized by overgrowth of the bones, skin, and other tissues. Organs and tissues affected by the disease grow out of proportion to the rest of the body. The overgrowth is usually asymmetric, which means it affects the right and left sides of …

Home - Proteus Family Network UK

    http://proteus-uk.org/
    THE UK SUPPORT GROUP for families and individuals affected by segmental overgrowth conditions. Specialising in Proteus Syndrome and Klippel Trenaunay Syndrome and welcoming enquiries from anyone who lives with an overgrowth condition 9.00am – 9.00pm, 365 days a year.

Proteus Syndrome Foundation - NORD (National Organization ...

    https://rarediseases.org/organizations/proteus-syndrome-foundation/
    The Proteus Syndrome Foundation is a national, voluntary, non-profit organization dedicated to providing information, assistance, and support to children with proteus syndrome and their families. Proteus syndrome is a rare, extremely variable disorder of unknown cause that may be characterized by partial enlargement of the hands and/or feet ...

Proteus syndrome Genetic and Rare Diseases Information ...

    https://rarediseases.info.nih.gov/diseases/7475/proteus-syndrome
    119 rows · Feb 23, 2017 · Proteus syndrome is characterized by excessive growth of a part or portion …

Proteus Syndrome: Frequently Asked Questions NHGRI

    https://www.genome.gov/27544873/faq-about-proteus-syndrome
    Scientists studying Proteus syndrome have previously hypothesized, or guessed, that the genetic alteration responsible for causing the condition would be mosaic. This is because of the way that Proteus syndrome affects people - some parts of the body appear to be affected with the condition while other body parts appear normal.

Proteus Syndrome - Pictures, Symptoms, Causes, Treatment ...

    http://syndrome.org/proteus-syndrome/
    Emotional support must be guaranteed to the client in order that he or she can withstand the down lows of Proteus syndrome. Educating the family and letting them understand the process of the disease is essential in order to protect the affected person from any emotional hurt. Proteus Syndrome Pictures

Proteus Syndrome - GeneReviews® - NCBI Bookshelf

    https://www.ncbi.nlm.nih.gov/books/NBK99495/
    Aug 09, 2012 · Proteus syndrome is characterized by progressive, segmental or patchy overgrowth of diverse tissues of all germ layers, most commonly affecting the skeleton, skin, and adipose and central nervous systems. In most individuals Proteus syndrome has minimal or no manifestations at birth, develops and progresses rapidly beginning in the toddler period, and relentlessly progresses through …



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