Pots Support Forum

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Dysautonomia International: Find a Support Group

    http://www.dysautonomiainternational.org/page.php?ID=24
    We know how valuable it can be for patients and caregivers to connect with others in their own community who are facing similar challenges. That is why we have compiled the following list of volunteer-led local dysautonomia support groups. Please note that Dysautonomia International cannot verify the accuracy of information posted on the groups.

Dysautonomia Discussion - Dysautonomia Information Network ...

    https://www.dinet.org/forums/forum/1-dysautonomia-discussion/
    Feb 10, 2018 · POTS Video: Living with POTS Information guides for family and friends NCS PAF MSA EDS Find a physician Newsletter - Dysautonomia News Link Directory Studies - Open Recruitment Research & News All of Us Research Program - NIH Physicians. Back; Find A Physician Advisors

DINET Dysautonomia Information Network

    https://www.dinet.org/
    Ivabradine is a drug currently used to treat heart failure but is not currently used for the treatment of POTS. Read more about this study. Recruiting: What is it like living with POTS during emerging adulthood? Virginia Tech is recruiting 18 - 29 year olds diagnosed with POTS for a family science study on POTS.

PoTS - Postural Tachycardia Syndrome

    https://www.potsuk.org/
    PoTS UK was founded by a group of healthcare professionals with PoTS who recognised the need to increase awareness of this condition. We educate and support patients, family, friends and medical professionals within the United Kingdom about this widely unrecognised and misdiagnosed condition by sharing up to date evidence and resources.

POTSibilities Parents Public Group Facebook

    https://www.facebook.com/groups/354719604583139/
    POTS + Possibilities = POTSibilities *PLEASE READ THIS! Please answer the questions that are generated when you ask to join the group. Also, when added please make sure to read the document...

Dysautonomia Information Network - POTSPLACE.COM

    http://potsplace.com/
    Connect With Others on Our Forum.. The DINET Forum allows you to meet others living with similar symptoms and experiences. With almost 6,000 members our community provides you with the opportunity to exchange tips and information, share your story, seek and offer support and encouragement and much more!

Support Groups - Life with POTS

    http://lifewithpots.weebly.com/support-groups.html
    Support groups can paint a depressing outlook for you if you're not careful. Advice from others in a support group is NOT medical advice. Never take anyone at their word, always do your own research. Support groups often have a lot of "drama". People feel comfortable saying things they …

POTS and Dysautonomia: Support Groups and Feeling Alone ...

    https://themighty.com/2016/11/pots-and-dysautonomia-support-groups-and-feeling-alone/
    It makes you feel empowered and gives you a sense of community. It’s so positive and brings hope. You don’t have to explain to them what dysautonomia or POTS are. Being in the support group gives me so much strength and joy. I am inspired by those in my support group, seeing them fight and give back to …

Support for the POTS population - Parkview Health

    https://www.parkview.com/community/dashboard/support-for-the-pots-population
    The support group. The Parkview Heart Institute is offering a new support group for those diagnosed with POTS or Dysautonomia. We are having monthly meetings to educate and support participants in managing their symptoms and meeting their health goals.

Dysautonomia (Autonomic Dysfunction) Help - Forums and ...

    https://www.medhelp.org/forums/Dysautonomia-Autonomic-Dysfunction/show/266
    This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.



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