Searching for Pigmentosum Support information? Find all needed info by using official links provided below.
https://xpfamilysupport.org/
The Xeroderma Pigmentosum (XP) Family Support Group exists to improve the quality of life for people with XP and other diagnosed UV light conditions. The Xeroderma Pigmentosum Family support group strives to create awareness and educate the public about XP, as well as to raise funds to promote research, create collaborations with international XP partner organizations, and provide family ...
https://www.thelivewelldirectory.com/Services/1653/Xeroderma-Pigmentosu
Jun 11, 2019 · A support group providing information to people with xeroderma pigmentosum other related conditions and their families. What is Xeroderma Pigmentosum (XP)? Xeroderma pigmentosum, which is commonly known as XP, is an extremely rare genetic skin condition for which there is no cure.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2249679/
Feb 23, 2008 · The XP Support Group (www.xpsupportgroup.org.uk) is a British charitable trust, founded in 1999. Its objectives are to relieve the needs of people with xeroderma pigmentosum (and other related conditions) and their families.Cited by: 13
https://xpsupportgroup.org.uk/
XP Support Group UV protection not isolation. The XP Support Group is a UK charitable Trust founded in 1999 by parents of a child with XP. It aims to relieve the needs of persons with Xeroderma Pigmentosum and other related conditions and their families.
https://rarediseases.org/organizations/xeroderma-pigmentosum-support-group/
The Xeroderma Pigmentosum Support Group (XPSG) provides support and encouragement to patients and families affected by xeroderma pigmentosum, a rare genetic disorder that causes extreme sensitivity to the sun's ultraviolet rays. Unless patients with XP are protected from sunlight, their skin and eyes may be severely damaged.
https://ghr.nlm.nih.gov/condition/xeroderma-pigmentosum
Oct 01, 2019 · Xeroderma pigmentosum, which is commonly known as XP, is an inherited condition characterized by an extreme sensitivity to ultraviolet (UV) rays from sunlight.This condition mostly affects the eyes and areas of skin exposed to the sun. Some affected individuals also have problems involving the nervous system.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3221642/
Nov 01, 2011 · Xeroderma pigmentosum (XP) is defined by extreme sensitivity to sunlight, resulting in sunburn, pigment changes in the skin and a greatly elevated incidence of skin cancers. It is a rare autosomal recessive disorder and has been found in all continents ...
https://www.guidestar.org/profile/59-3824809
The Xeroderma Pigmentosum (XP) Family Support group exists to improve the quality of life for those persons with XP and other diagnosed ultraviolet light conditions. Notes from the Nonprofit. Xeroderma Pigmentosum Family Support Group is a founding member of the International Coalition of Xeroderma Pigmentosum Patient Support, Research, and ...
https://rarediseases.org/organizations/xp-family-support-group/
The Xeroderma Pigmentosum (XP) Family Support Group exists to improve the quality of life persons of those persons with XP and other diagnosed UV light condition. The Xeroderma Pigmentosum Family support group raises funds for create awareness and educate the public about XP, research, gives grants for UV protective equipment and products ...
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