Searching for Organizations That Support Muscular Dystrophy information? Find all needed info by using official links provided below.
Duchenne Muscular Dystrophy is a relentless, cruel disease. It is the world’s #1 lethal childhood genetic disorder. The Foundation to Eradicate Duchenne (FED) exists to fund scientific research for treatments for today’s generation of boys and young men who suffer from Duchenne.
https://lgmd-info.org/organizations/
Below is a list of organizations and foundations that support limb girdle muscular dystrophy (LGMD) specific research and services. Most of these organizations are 501 (c)(3) tax-exempt public charities.
Muscular Dystrophy Association Announces 2020-2021 National Ambassador Ethan LyBrand from Alabama. Ethan's goals are to find a cure for all types of muscular dystrophy, help people get the healthcare they need when they need it and make airplanes more accessible for wheelchairs. Read More
https://www.mda.org/care/request-services
To request services or support, please complete this short form and one of our trained MDA Resource Specialists will contact you. Or, call us directly at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA services are only available in the U.S.
https://www.christopherreeve.org/living-with-paralysis/health/causes-of-paralysis/muscular-dystrophy
Muscular Dystrophy Association is dedicated to assisting people living with neuromuscular disease. Muscular Dystrophy Family Foundation provides a myriad of support services including supplying adaptive equipment. Parent Project Muscular Dystrophy, parents of children with Duchenne and Becker Muscular Dystrophy founded this not-for-profit ...
https://www.duchenne.com/resources
The Duchenne community is inspiring and supportive. There are many helpful resources and organizations to support families living with Duchenne. Here are just a few to get you started. Sarepta does not endorse nor is responsible for the content of any of the listed websites or the services provided by these organizations. This is not a complete list of available websites.
https://rarediseases.info.nih.gov/diseases/5900/becker-muscular-dystrophy
Sep 03, 2016 · Becker muscular dystrophy (BMD) is an inherited condition that causes progressive weakness and wasting of the skeletal and cardiac (heart) muscles. It primarily affects males. The age of onset and rate of progression can vary. Muscle weakness usually …
https://www.thinkgenetic.com/diseases/duchenne-and-becker-muscular-dystrophy/organizations/7809
There are many support groups or organizations for Duchenne muscular dystrophy that provide support, information, advice, referrals to physicians and medical centers, and up-to-date information on research and treatments. Many of these groups also fund research. Support …
https://www.cureduchenne.org/
Our innovative venture philanthropy model funds groundbreaking research, early diagnosis and treatment access. With pioneering education and support programs, our organization drives real change for those with Duchenne muscular dystrophy and their loved ones.
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