Omphalocele Stories And Support

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Real Stories: Living with Omphalocele CDC

    https://www.cdc.gov/ncbddd/birthdefects/stories/omphalocele.html
    The infant’s intestines, liver, or other organs stick outside of the belly through the belly button. The organs are covered in a thin, nearly transparent sac that hardly ever is open or broken. To learn what it’s like to live with this condition or how families are affected, read these real stories from people living with omphalocele.

Facts about Omphalocele CDC

    https://www.cdc.gov/ncbddd/birthdefects/omphalocele.html
    Dec 05, 2019 · Omphalocele (pronounced uhm-fa-lo-seal) is a birth defect of the abdominal (belly) wall. The infant’s intestines, liver, or other organs stick outside of the belly through the belly button. The organs are covered in a thin, nearly transparent sac that hardly ever is open or broken.

Omphalocele: Charlie's Story Children's Hospital of ...

    https://www.chop.edu/stories/omphalocele-charlies-story
    Before Charlie came home from the hospital, Children's Hospital staff taught Gayle and Charles how to insert and care for the feeding tube and oxygen. This was just one example of the tremendous chain of support at Children's Hospital, says Gayle, who herself now is a resource for other families with babies with omphalocele.

Blair's Story - Omphalocele St. Louis Childrens Hospital

    https://www.stlouischildrens.org/health-resources/pulse/blairs-story-omphalocele
    Our other priority was to immediately address the omphalocele. Based on my doctor’s recommendations—and my research—we opted for the “paint and wait” treatment.” This approach involves “painting” the sac covering the omphalocele with Silvadene, a cream that is …

Omphalocele UCSF Fetal Treatment Center

    https://fetus.ucsf.edu/omphalocele
    What is the outcome for a fetus with omphalocele? watch video. The outcome depends on the size of omphalocele, the presence of other defects, or if there is chromosome abnormalities present or concern for a genetic syndrome. Fetuses with small or medium-sized omphaloceles and no other problems do extremely well with surgical repair after birth.

Omphalocele Birth Anomalies Prognosis & Treatment

    https://www.cincinnatichildrens.org/health/o/omphalocele
    Apr 01, 2019 · Omphalocele is a rare birth defect. An omphalocele happens when the bowel, liver and sometimes other organs remain outside the belly in a sac. Since some or all of the belly organs are outside of the body, they may be injured and the belly does not grow to its normal size. The belly may be too small to hold all of the organs.

Omphalocele Children's Hospital Colorado

    https://www.childrenscolorado.org/conditions-and-advice/conditions-and-symptoms/conditions/omphalocele/
    Apr 06, 2017 · Omphalocele treatment plans depend on the number of organs involved and how much of those organs remain outside of the belly at birth. If only parts of the intestines are protruding, surgeons return them to the abdomen soon after birth and close the opening in the abdominal wall.

Omphalocele - Sadie's Story of hope - YouTube

    https://www.youtube.com/watch?v=DWbxkT_1NGI
    Jan 31, 2014 · Today, (January 31st) is Omphalocele Awareness Day. We are taking this opportunity to share Sadie's story. Every journey with an Omphalocele (Exampholos) baby is different but this is ours. These ...Author: Serina Lindsley

Omphalocele Mom

    https://omphalocelemom.blogspot.com/
    Support, information, and stories from an Omphalocele mom



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