Searching for Nf1 Support information? Find all needed info by using official links provided below.
https://www.inspire.com/groups/neurofibromatosis-network/
A support forum for people with neurofibromatosis and their caregivers. Get support for NF1, NF2, and Schwannomatosis.
The Neurofibromatosis Network is the leading national organization advocating for federal funding for NF research and building and supporting NF communities.
https://www.nfmidwest.org/what-we-do/support/
Providing Support and Building Community. NF Midwest is dedicated to ensuring that NO ONE in the Midwest living with the complicated disorders of NF1, NF2 or schwannomatosis FIGHTS ALONE. We have a dedicated social worker for adults with NF and for families. We provide tools to meet others and to build a community of support.
https://www.nfnetwork.org/community/local-groups/
Local Groups NF Network Inspire Support Community Camp New Friends. Resources. Webinars Educational Materials Worldwide Resources Other Resources. Events. Calendar NF Hope Concerts #NFStrong Events Docs Rock for NF Scully Coffee4NF Gillian Anderson X-Files Auction Links for Lauren Rock Out to Knock Out Run4NF.
https://www.facebook.com/Neurofibromatosis-Support-345030432837/
Neurofibromatosis Support. 8,995 likes · 16 talking about this. This page was set up to help people share stories and give support to others living with NF.There are links in the link's tab on this...5/5(3)
https://nervetumours.org.uk/
Nerve Tumours UK provides support and information, as well as campaigns and raises awareness on behalf of over 26,500 people in the UK who have Neurofibromatosis (NF1 and NF2) and Schwannomatosis. We’re here to improve lives for people with nerve tumours, by making sure those affected have access to the help they require.
https://ghr.nlm.nih.gov/condition/neurofibromatosis-type-1
Neurofibromatosis type 1 is considered to have an autosomal dominant pattern of inheritance. People with this condition are born with one mutated copy of the NF1 gene in each cell. In about half of cases, the altered gene is inherited from an affected parent.The remaining cases result from new mutations in the NF1 gene and occur in people with no history of the disorder in their family.
https://rarediseases.info.nih.gov/diseases/7866/neurofibromatosis-type-1
Feb 16, 2017 · Neurofibromatosis type 1 (NF1) is a genetic condition characterized primarily by changes in skin color and the growth of benign (non-cancerous) tumors along the nerves of the skin, brain, and other parts of the body. The severity and specific features can vary greatly from person to person. NF1 belongs to a group of related conditions called the RASopathies.
https://www.ctf.org/understanding-nf/nf1
About NF1. Neurofibromatosis, also known as NF, is a genetic disorder that affects 1 in every 3,000 people. There are three types of NF: NF1, NF2, and schwannomatosis. Neurofibromatosis type 1 (NF1), formerly known as von Recklinghausen NF or Peripheral NF, is the most common of the three types of neurofibromatosis, and is also one of the most common inherited neurological disorders, affecting ...
https://www.dailystrength.org/group/neurofibromatosis
Neurofibromatosis Support Group. Neurofibromatosis is usually noncancerous. There are three types of this condition. Type 1 usually appears in childhood, while Types 2 and 3 appear in early adulthood. Type 1 can cause bone deformities, learning disabilities, and high blood pressure. Type 2 can cause hearing loss, vision loss, and difficulty ...
https://nervetumours.org.uk/what-are-nerve-tumours/information-documents
This support document is designed to support employers in creating the appropriate environment for their employees with NF1. It discusses some basic information about NF1, the learning difficulties that may arise from the condition and how you as an employer can help.
https://www.nfmidwest.org/
Improving the Lives of People with Neurofibromatosis. Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis.
https://rarediseases.org/rare-diseases/neurofibromatosis-type-1-nf1/
General Discussion. Summary. Neurofibromatosis 1 (NF1), also called von Recklinghausen's disease, is a genetic disorder characterized by the development of multiple noncancerous (benign) tumors of nerves and skin (neurofibromas) and areas of abnormal skin color (pigmentation).
https://www.mdjunction.com/neurofibromatosis
The Neurofibromatosis Support Group is a community of patients, family members and friends dedicated to dealing with Neurofibromatosis, together.
http://texasnf.org/Meet_Others_with_NF/Support
Oct 27, 2019 · Our Mission: The Texas NF Foundation is committed to meeting the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure.
http://www.understandingnf1.org/
How do I care for and support my child? • How do I talk about NF1? Parents Abby and Paul speak with an expert about their daughter Hannah's NF1. You will need QuickTime 5 to view the video resources in this site. A resource from the Harvard Medical School Center for Neurofibromatosis and Allied Disorders. ...
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