Searching for Neurofibromatosis Support information? Find all needed info by using official links provided below.
The Neurofibromatosis Network is the leading national organization advocating for federal funding for NF research and building and supporting NF communities.
https://www.inspire.com/groups/neurofibromatosis-network/
The Neurofibromatosis Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Neurofibromatosis Network, an Inspire trusted partner. More about this community
https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/neurofibromatosis/patient-information/support_groups.html
Neurofibromatosis Mid-Atlantic provides information and support to people with neurofibromatosis (NF), their families and anyone interested in the disorder. Advocure for NF2 Advocure for NF2 is an advocacy group which offers resources on research and drug clinical trials for NF2 throughout the world.
https://www.nfmidwest.org/
Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. Help raise NF support. Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. Help raise NF support.
https://www.dailystrength.org/group/neurofibromatosis
Neurofibromatosis Support Group. Neurofibromatosis is usually noncancerous. There are three types of this condition. Type 1 usually appears in childhood, while Types 2 and 3 appear in early adulthood. Type 1 can cause bone deformities, learning disabilities, and high blood pressure. Type 2 can cause hearing loss, vision loss, and difficulty ...
https://www.mdjunction.com/neurofibromatosis
The Neurofibromatosis Support Group is a community of patients, family members and friends dedicated to dealing with Neurofibromatosis, together.
https://nyulangone.org/conditions/neurofibromatosis/support
A wide variety of support services for adults and children who have neurofibromatosis and their families are available through the Comprehensive Neurofibromatosis Center and from other specialists at the Sala Institute for Child and Family Centered Care, part of Hassenfeld Children’s Hospital at NYU Langone. Coordination of Care
Our Mission: The Texas NF Foundation is committed to meeting the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure.
NFNE is a non profit 501(c)(3) organization incorporated (as Neurofibromatosis, Mass Bay Area) by a group of people who were in some way affected by the genetic disorder known as neurofibromatosis …
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