Searching for Muscular Dystrophy Support Web Sites information? Find all needed info by using official links provided below.
Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA services are only available in …
https://www.cdc.gov/ncbddd/musculardystrophy/links.html
Find links to other websites with information about muscular dystrophy. ... Links to Other Muscular Dystrophy Resources. ... support services, advocacy and education. Parent Project Muscular Dystrophy (PPMD) external icon A nonprofit organization focusing on Duchenne muscular dystrophy. PPMD funds research, raises awareness, promotes advocacy ...
https://www.mda.org/care/resource-list
View the latest edition of our award-winning Quest magazine, filled with resources, stories and support for individuals and families with a neuromuscular disease. Additional Resources MDA has gathered an extensive list of related online resources, including government websites, to help assist you in locating assistance relating to education ...
https://www.curecmd.org/support-groups
Support Groups, Pages, and Websites by Subtype ... Muscular Dystrophy Spousal Support Group . Collagen VI. Full Spectrum of Collagen VI/Disorders from Ullrich CMD through Bethlem Myopathy. Ullrich CMD (Intermediate to Severe Collagen VI) Support Group.
https://www.fshdsociety.org/
Jan 10, 2020 · The FSHD Society is a convener and collaborator to find solutions, but we can’t do it alone. We need you to join us. Your participation is vital to creating a world free of the suffering caused by Facioscapulohumeral Muscular Dystrophy (FSHD).
https://musculardystrophynews.com/forums/
Muscular Dystrophy News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
https://www.webmd.com/children/what-is-muscular-dystrophy
To learn more about muscular dystrophy or find a support group in your area, visit the web site of the Muscular Dystrophy Association. WebMD Medical Reference …Author: Stephanie Watson
https://www.cdc.gov/ncbddd/musculardystrophy/links.html
Find links to other websites with information about muscular dystrophy. ... support services, advocacy and education. Parent Project Muscular Dystrophy (PPMD) external icon A nonprofit organization focusing on Duchenne muscular dystrophy. PPMD funds research, raises awareness, promotes advocacy, connects the community, and broadens treatment ...
Muscular Dystrophy Association Announces 2020-2021 National Ambassador Ethan LyBrand from Alabama. Ethan's goals are to find a cure for all types of muscular dystrophy, help people get the healthcare they need when they need it and make airplanes more accessible for wheelchairs. Read More
https://www.webmd.com/children/duchenne-muscular-dystrophy
Getting Support. To learn more about Duchenne muscular dystrophy or find a support group in your area, visit: Cure Duchenne, the Muscular Dystrophy Association, or the Parent Project Muscular ...Author: Stephanie Watson
https://www.sciencedirect.com/topics/neuroscience/muscular-dystrophy
Anthony Kincaid, in xPharm: The Comprehensive Pharmacology Reference, 2007. Other Information – Web Sites. Muscular Dystrophy Association; MDA-This freely accessible, comprehensive web site is sponsored by the MDA, a voluntary health agency, and contains educational and health service information on the muscular dystrophies and other neuromuscular diseases for patients and health …
https://www.webmd.com/children/what-is-muscular-dystrophy
To learn more about muscular dystrophy or find a support group in your area, visit the web site of the Muscular Dystrophy Association. WebMD Medical Reference Reviewed by Jennifer Robinson, MD on ...Author: Stephanie Watson
https://www.cdc.gov/ncbddd/musculardystrophy/research.html
The Centers for Disease Control and Prevention (CDC) funds the Muscular Dystrophy Surveillance, Tracking, and Research Network, known as MD STARnet.MD STARnet collects critical information about muscular dystrophy that aims to improve care for those living with the disease.. MD STARnet is the only research program designed to collect health information on everyone with muscular dystrophy ...
https://www.dailystrength.org/group/muscular-dystrophies
Muscular Dystrophies Support Group. The muscular dystrophies are a group of genetic and hereditary muscle diseases; characterized by progressive skeletal muscle weakness, defects in muscle proteins, and the death of muscle cells and tissue. In some forms of muscular dystrophy, cardiac and smooth muscles are affected.
https://www.sciencedirect.com/topics/medicine-and-dentistry/muscular-dystrophy
Anthony Kincaid, in xPharm: The Comprehensive Pharmacology Reference, 2007. Other Information – Web Sites. Muscular Dystrophy Association; MDA-This freely accessible, comprehensive web site is sponsored by the MDA, a voluntary health agency, and contains educational and health service information on the muscular dystrophies and other neuromuscular diseases for patients and health …
https://www.musculardystrophyuk.org/talkmd/
Muscular Dystrophy UK forums - Talk about your condition, ask questions, get advice and support. Parent forum. A place for parents to discuss their children's conditions. Topics: 26. Replies: 69. ... we are hosting a 20-minute web ... Joe lives with Becker muscular dystrophy and share his thoughts with us on the emotional impact it has on him.
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