Searching for Lissencephaly Support information? Find all needed info by using official links provided below.
https://www.ninds.nih.gov/Disorders/All-Disorders/Lissencephaly-Information-Page
Mar 27, 2019 · Lissencephaly, which literally means "smooth brain," is a rare, gene-linked brain malformation characterized by the absence of normal convolutions (folds) in the cerebral cortex and an abnormally small head (microcephaly). In the usual condition of lissencephaly, children usually have a normal sized head at birth.
https://www.webmd.com/brain/what-is-lissencephaly
Lissencephaly is a rare condition that causes a child’s brain to develop the wrong way during pregnancy.. A child with the disorder may have an unusual-looking face or a hard time swallowing ...
https://en.wikipedia.org/wiki/Lissencephaly
Lissencephaly (meaning "smooth brain") is a set of rare brain disorders where the whole or parts of the surface of the brain appear smooth. It is caused by defective neuronal migration during the 12th to 24th weeks of gestation resulting in a lack of development of brain folds and grooves . It is a form of ...Specialty: Medical genetics, neurology
http://lissencephaly.proboards.com/thread/288/lissencefhaly-support-group
Apr 13, 2018 · X-linked Lissencephaly with Ambiguous Genitalia (XLAG) Baraitser-Winter syndrome (BWS) Micro Syndrome Lissencephaly with Cerebellar Hypoplasia (LCH) Lissencephaly with agenesis of the Corpus Callosum (LACC) Schizencephaly (SCH)* Polymicrogyria (PMG)* I run a support group for famiies living with these conditions. We are all going through the same.
https://rarediseases.org/rare-diseases/lissencephaly/
Lissencephaly type 1, also known as classic lissencephaly, is a brain malformation that may occur as an isolated abnormality (isolated lissencephaly sequence [ILS]) or in association with certain syndromes (e.g., Miller-Dieker syndrome).
http://wearerare.org/lissencephaly/
Support this Campaign. Ends: Lissencephaly day Proclamation forms. We are RARE inc is honored to assist the Lissencephaly community. In a jump-start to help this movement we have created a ribbon in selected colors ( grey & blue)grey for grey matter and blue …
https://www.dailystrength.org/group/brain-injury/discussion/lissencephaly
Apr 01, 2008 · Hello, My name is Yvonne and I just started a support and awareness group in this community. The name of the group is called Lissencephaly Awareness and Support. Lissencephaly is a rare brain disorder and my 6 month old grandson was just …
http://www.kumc.edu/gec/support/lissence.html
E-mail: [email protected] or [email protected] see Genetics Page (recurrence rates for different types) and Lissencephaly Types and Genetics Lissencephaly Network c/o Debbie Bloor 1549 Regent Street Regina, Saskatchewan S4N 1S1 CANADA Phone: 306-569-0146 Lissencephaly Launch Pad, United Kingdom (parents web site)
https://www.healthline.com/health/lissencephaly
Lissencephaly can’t be reversed. Treatment aims to support and comfort affected children. For example, children who have difficulty feeding and swallowing may need a gastrostomy tube inserted ...
How to find Lissencephaly Support information?
Follow the instuctions below:
- Choose an official link provided above.
- Click on it.
- Find company email address & contact them via email
- Find company phone & make a call.
- Find company address & visit their office.
