Searching for Li Fraumeni Support information? Find all needed info by using official links provided below.
https://www.lfsassociation.org/
LFS Association provides a wide range of information, advocacy, and support services for individuals and families with Li-Fraumeni Syndrome.
https://www.livinglfs.org/support/
Li-Fraumeni Syndrome Support Group is a Facebook Closed Group with people from all over the world who understand what it is like to be Living LFS. We limit this group to those with LFS, their primary caregiver, or for those undergoing testing for the P53 mutation.
https://www.lfsassociation.org/contact-us/support/
1st Annual Li-Fraumeni Syndrome Conference 2nd Annual “Living with LFS” Webinar Conference The 2016 International LFS Conference & The 3rd Annual LiFE …
Li-Fraumeni syndrome is a rare, inherited disorder that is caused by mutations (changes) in the TP53 gene. Having Li-Fraumeni syndrome increases the risk of developing many types of cancer. Cancers often develop at an early age, and more than one type of cancer may occur in the same person.
https://blog.dana-farber.org/insight/2019/08/living-with-li-fraumeni-syndrome-is-using-knowledge-as-power/
Aug 30, 2019 · To serve and support people in either of these categories, Dana-Farber developed the Li-Fraumeni Syndrome and TP53 Center. It is the first comprehensive, multidisciplinary center in the world that specializes in coordinating the care of people …
https://www.facebook.com/groups/90503981891/
A place for those Living Li-Fraumeni Syndrome to get support and share stories. The best group you never wanted to join. *** Membership by Request- please check your "other" message folder for...
https://rarediseases.info.nih.gov/diseases/6902/li-fraumeni-syndrome
May 04, 2015 · Li-Fraumeni syndrome (LFS) is an inherited condition that is characterized by an increased risk for certain types of cancer.Affected people often develop cancer at an earlier age than expected and may be diagnosed with more than one cancer during their lifetime.
https://rarediseases.org/rare-diseases/li-fraumeni-syndrome/
Li-Fraumeni syndrome (LFS) is an inherited familial predisposition to a wide range of certain, often rare, cancers. This is due to a change (mutation) in a tumor suppressor gene known as TP53. The resulting p53 protein produced by the gene is damaged (or otherwise rendered malfunctioning), and is ...
https://en.wikipedia.org/wiki/Li%E2%80%93Fraumeni_syndrome
Li-Fraumeni Syndrome Association (LFS Association / LFSA) is a non-profit, patient advocacy organization that provides patient and research support, and education, globally. Reference https://www.lfsassociation.org/ for more information and resources.Specialty: Oncology, medical genetics
The George Pantziarka TP53 Trust is the UK’s only charity dedicated to supporting families with Li Fraumeni Syndrome and related conditions. It offers practical support and advice, publishes information for patients and doctors alike and is dedicated to making a difference with research.
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